Completeness and usability of ethnicity data in UK-based primary care and hospital databases.
Completeness and usability of ethnicity data in UK-based primary care and hospital databases.
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DOI：
10.1093/pubmed/fdt116
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发表时间：
2014-12
期刊：
影响因子：
--
通讯作者：
Smeeth L
中科院分区：
文献类型：
--
作者：
Mathur R;Bhaskaran K;Chaturvedi N;Leon DA;vanStaa T;Grundy E;Smeeth L
在过去的十年里，整个国民保健服务（NHS）的种族记录有了显着改善。本研究概述了在初级保健和医院环境中常规收集的种族数据的完整性、一致性和代表性。在临床实践研究数据链（CPRD）和医院事件统计（HES）中检查了种族记录的完整性和一致性，并将CPRD的种族分类与2011年英国人口普查的种族分类进行了比较。CPRD（1990-2012）中27.1%的患者记录了种族。自2006年4月以来，这一比例上升到78.3%。《残疾人权利公约》的种族分类与联合王国的人口普查相当。79.4%的HES住院患者、46.8%的门诊患者和26.8%的A&E患者记录了他们的种族。在记录种族>1次的患者中，除HES住院患者外，所有数据集的一致性均超过90%。结合CPRD和HES将完整性提高至97%，两个数据库中记录的患者种族相同。从2006年起，使用CPRD种族最大限度地提高了与英国人群的完整性和可比性。NHS内部和跨NHS来源的高度一致性表明，这些数据在检查护理连续性时具有很高的价值。A&E和门诊数据的完整性和一致性较差，使这些来源不可靠。
Ethnicity recording across the National Health Service (NHS) has improved dramatically over the past decade. This study profiles the completeness, consistency and representativeness of routinely collected ethnicity data in both primary care and hospital settings. Completeness and consistency of ethnicity recording was examined in the Clinical Practice Research Datalink (CPRD) and Hospital Episode Statistics (HES), and the ethnic breakdown of the CPRD was compared with that of the 2011 UK censuses. 27.1% of all patients in the CPRD (1990–2012) have ethnicity recorded. This proportion rises to 78.3% for patients registered since April 2006. The ethnic breakdown of the CPRD is comparable to the UK censuses. 79.4% of HES inpatients, 46.8% of outpatients and 26.8% of A&E patients had their ethnicity recorded. Amongst those with ethnicity recorded on >1 occasion, consistency was over 90% in all data sets except for HES inpatients. Combining CPRD and HES increased completeness to 97%, with 85% of patients having the same ethnicity recorded in both databases. Using CPRD ethnicity from 2006 onwards maximizes completeness and comparability with the UK population. High concordance within and across NHS sources suggests these data are of high value when examining the continuum of care. Poor completeness and consistency of A&E and outpatient data render these sources unreliable.
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影响因子：
4.4
作者：
Kumarapeli, P.;Stepaniuk, R.;Rowlands, G.
通讯作者：
Rowlands, G.
影响因子：
3.4
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Herrett, Emily;Thomas, Sara L.;Hall, Andrew J.
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影响因子：
2.9
作者：
Saunders, C. L.;Abel, G. A.;Lyratzopoulos, G.
通讯作者：
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影响因子：
--
作者：
Hippisley-Cox, J;O'Hanlon, S;Coupland, C
通讯作者：
Coupland, C