Public involvement in designing a study on patient-witnessed cardiopulmonary resuscitation in hospital

Public involvement in designing a study on patient-witnessed cardiopulmonary resuscitation in hospital
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公众参与设计一项医院患者见证心肺复苏研究

DOI:
10.1111/nicc.12429
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发表时间:
2020-09-01
影响因子:
3
通讯作者:
Latour, Jos M.
Latour, Jos M.
中科院分区:
医学3区
文献类型:
--
作者:
Fiori, Martina;Endacott, Ruth;Latour, Jos M.

文献摘要

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本文的目的是报告与前患者和医疗保健专业人员的咨询轮的结果,通知设计的定性研究。我们的目的是了解利益相关者对一项拟议研究的相关性的看法,该研究旨在研究目睹心肺复苏术的患者对医院其他患者的影响,拟议方法的适当性和伦理方面。我们进行了一项在线调查(n= 22)和电话采访(n= 4)与英国心脏基金会慈善机构和一个焦点小组(n= 15)与医院的医疗保健专业人员参与心肺复苏活动的前患者。采用专题分析法对数据进行了分析。各轮协商就三大主题提供了宝贵意见:概念方面、方法方面和实际建议。概念方面涉及拟议研究的相关性,对参与患者的情感影响以及患者之间的社会互动如何影响见证体验。方法上的意见包括招募策略和数据收集方法,例如使用个人和焦点小组访谈、与病人访谈的时间表和访谈指南的主题。关于第三个主题,提出了一些实际建议,例如宣传研究报告的战略,加强公众和参与者在整个研究过程中的参与,以及传播研究结果。总体而言,患者和医疗保健专业人员认为本次咨询中提出的研究具有相关性和价值,可提高对心肺复苏术和患者住院经历未考虑方面的认识并产生新证据。这些利益攸关方的协商回合是一项宝贵的工作,可以根据研究人员、服务使用者和临床医生之间的共同愿景设计高质量的研究。他们还提供了实用的建议,告知重症监护实践,以支持在医院目睹心肺复苏术的患者。
The aim of this paper is to report the findings of the consultation rounds with former patients and health care professionals to inform the design of a qualitative study. We aimed to understand stakeholders' views regarding the relevance of a proposed study looking at the impact of patients witnessing cardiopulmonary resuscitation on other patients in hospital, the appropriateness of the proposed methodology and ethical aspects. We conducted an online survey (n= 22) and telephone interviews (n= 4) with former patients linked to the British Heart Foundation charity and a focus group (n= 15) with hospital health care professionals involved in cardiopulmonary resuscitation activities. Data were analysed using thematic analysis. The consultation rounds provided valuable advice on three major themes: conceptual aspects, methodological aspects and practical suggestions. The conceptual aspects were related to the relevance of the proposed study, the emotional impact for participating patients and how the social interaction among patients could influence the witnessing experience. Methodological advice included recruitment strategies and data collection methods such as the use of individual and focus group interviews, the timeframe of interviews with patients and the topics of the interview guides. In the third theme, practical suggestions were provided, such as strategies to advertise the study, improving the public's and participants' engagement throughout the study process and disseminating the findings. Overall, the study proposed in this consultation was considered relevant and worthy by patients and health care professionals to raise awareness and generate new evidence on an unconsidered aspect of cardiopulmonary resuscitation and of patients' hospital experience. These stakeholders' consultation rounds constituted a valuable exercise to design high-quality research based on a shared vision among researchers, service users and clinicians. They also provided pragmatic advice to inform critical care practice to support patients witnessing cardiopulmonary resuscitation in hospital.