Bodily changes among people living with physical impairments and chronic illnesses: biographical disruption or normal illness?
Bodily changes among people living with physical impairments and chronic illnesses: biographical disruption or normal illness?
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DOI：
10.1111/j.1467-9566.2012.01460.x
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发表时间：
2012-11-01
影响因子：
2.9
通讯作者：
Grassman, Eva Jeppsson
中科院分区：
文献类型：
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作者：
Larsson, Annika Taghizadeh;Grassman, Eva Jeppsson
这篇文章关注的是那些患有慢性疾病和早发性损伤的人。他们的疾病并发症、身体和功能丧失的经历与伯里所说的传记中断相似。然而，尽管Bury认为慢性疾病对个人来说是一种危急情况，部分原因是它的意外性质，但这并不适用于我们两项研究的参与者。第二个不同之处在于，伯里含蓄地暗示，这种破坏是一个单一事件，是慢性疾病早期的特征。反复的干扰似乎影响了几位受访者的生活。与此同时，这篇文章挑战了一些研究，这些研究表明，中断的概念与晚年生活和那些经历过艰难生活的人不太相关，同时也质疑了一种观点，即从早年开始就患有慢性病的人的生活特征是连续性而不是变化。在其方法中，这篇文章回应了威廉姆斯对慢性疾病社会学研究的要求，即将主要关注中年生活的传记扩展到生命历程的两端。
This article focuses on individuals who are growing old with chronic illnesses and early onset impairments. Their experience of illness complications, bodily and functional losses is similar to what Bury has referred to as a biographical disruption. However, whereas Bury argues that a chronic illness amounts to a critical situation for the individual, partly due to its unexpected nature, this does not apply to the participants in our two studies. A second difference concerns Bury's implicit suggestion that the disruption is a single event that is characteristic of the early stage of a chronic illness. Repeated disruptions seemed to shape the lives of several of those interviewed. At the same time, this article challenges studies which suggest that the notion of disruption is less relevant to people in later life and to those who have experienced difficult lives, and also questions the argument that continuity rather than change characterises the lives of people who have had chronic conditions since their early years. In its approach, the article responds to Williams' request for studies in the sociology of chronic illness that extend the predominant biographical focus on the middle years of life to both ends of the life course.