Chronic sorrow in parents of children with type 1 diabetes
Chronic sorrow in parents of children with type 1 diabetes
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DOI：
10.1111/j.1365-2648.2009.04963.x
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发表时间：
2009-05-01
影响因子：
3.8
通讯作者：
Gregory, John W.
中科院分区：
文献类型：
--
作者：
Bowes, Susan;Lowes, Lesley;Gregory, John W.
1型糖尿病患儿父母的长期悲伤。本文报道了一项研究，探讨父母长期养育1型糖尿病患儿的经历。1型糖尿病患儿的父母在诊断时可能会经历类似于通常与丧亲有关的悲伤反应，但对他们的长期情绪适应知之甚少。慢性悲伤，一个持续的，但间歇性的悲伤反应，是确定在成年糖尿病患者，但以前没有被探讨在有关parents. In深入访谈进行了2007年与方便的样本17 1型糖尿病儿童的父母诊断后7-10年。数据在悲伤、损失、适应和改变的理论框架内进行了探索。父母已经适应了糖尿病管理的需要，但大多数人还没有接受诊断。在孩子成长的关键时期，他们经历了悲伤的复苏，有些人，特别是母亲，在面谈时变得心烦意乱，即使这些面谈是在孩子被诊断出7-10年后进行的。母亲比父亲更详细地阐述了自己的情绪，但父亲和母亲都表达了与悲伤相关的持续感受，例如愤怒和内疚。更好地了解父母的长期情绪反应，并认识到这些父母的悲伤可能永远不会解决，这可能使医疗保健专业人员能够在关键时刻提供适当和及时的支持。
Chronic sorrow in parents of children with type 1 diabetes.This paper reports on a study exploring parents' longer-term experiences of having a child with type 1 diabetes.Parents of children with type 1 diabetes may experience a grief reaction at diagnosis similar to that normally associated with bereavement, but little is known about their long-term emotional adaptation. Chronic sorrow, a sustained but intermittent grief reaction, is identified in adults with diabetes but has not previously been explored in relation to parents.In-depth interviews were conducted in 2007 with a convenience sample of 17 parents of children with type 1 diabetes 7-10 years after diagnosis. Data were explored within a theoretical framework of grief, loss, adaptation, and change.Parents had adapted to the needs of diabetes management but most had not 'come to terms' with the diagnosis. They experienced a resurgence of grief at critical times during their child's development and some, particularly mothers, became upset during their interviews, even though these took place 7-10 years after their child's diagnosis. Mothers elaborated more on their emotions than fathers, but continuing feelings associated with grief, such as anger and guilt, were expressed by both fathers and mothers.Greater understanding of parents' long-term emotional responses and recognition that grief may never resolve in these parents may enable healthcare professionals to provide appropriate and timely support at critical times.