The lived experiences of adolescents with sickle cell disease in Kingston, Jamaica.
The lived experiences of adolescents with sickle cell disease in Kingston, Jamaica.
复制标题
DOI：
10.3402/qhw.v10.28104
复制
发表时间：
2015
影响因子：
1.8
通讯作者：
Lindo JL
中科院分区：
文献类型：
--
作者：
Forrester AB;Barton-Gooden A;Pitter C;Lindo JL
探讨牙买加金斯顿青少年镰状细胞病患者的生活经历。本研究采用描述性质性研究设计。在西印度群岛大学的镰状细胞单位与六名青少年镰状细胞病进行了深入的访谈。访谈录了音，转录，并进行了主题分析。大多数青少年表现出积极的自我概念。他们报告说，强大的家庭，学校和同龄人的支持，使他们感到接受。所有人都积极参加聚会等社会活动，但在参加体育活动方面遇到了挑战。各种应对策略被用来应对疾病的挑战，包括祈祷，看电视和上网。镰状细胞病对青少年来说是非常具有挑战性的，但随着积极的自我概念和社会支持的增加，特别是来自家庭和同龄人的支持，这些青少年能够有效地科普他们的病情并过上富有成效的生活。
To explore the lived experiences of adolescents with sickle cell disease, in Kingston, Jamaica. A descriptive qualitative design was used for this research. In-depth interviews were conducted with six adolescents with sickle cell disease at a Sickle Cell Unit operated by the University of the West Indies. Interviews were audiotaped, transcribed, and thematically analyzed. The majority of the adolescents demonstrated a positive self-concept. They reported strong family, school, and peer support which made them feel accepted. All were actively engaged in social activities such as parties, but had challenges participating in sporting activities. Various coping strategies were utilized to address challenges of the disease including praying, watching television, and surfing the Internet. Sickle cell disease can be very challenging for the adolescent, but with positive self-concept and increased social support, especially from family and peers, these adolescents were able to effectively cope with their condition and live productive lives.