Health-related quality of life in children diagnosed with asthma, diabetes, juvenile chronic arthritis or short stature

Health-related quality of life in children diagnosed with asthma, diabetes, juvenile chronic arthritis or short stature
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DOI:
10.1080/08035250500437499
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发表时间:
2006-04-01
期刊:
影响因子:
3.8
通讯作者:
Fasth, A
Fasth, A
中科院分区:
医学4区
文献类型:
--
作者:
Norrby, U;Nordholm, L;Fasth, A

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目标:1)评估瑞典版儿童健康问卷(CHQ)的信度和效度,2)确定儿童和父母对CHQ的反应之间的相关性,3)描述和比较四个诊断组对CHQ的反应。研究方法:共有199名9-16岁的瑞典儿童被诊断为哮喘(n = 53),糖尿病(n = 48),身材矮小(n = 51)和青少年慢性关节炎(JCA,n = 47)和他们的父母回答了CHQ和相关的验证工具在诊所检查。确定了仪器所有尺寸的系数α,除四个外,所有尺寸的可靠性都可接受至非常好(0.75-0.94)。结果:关于结构效度,CHQ与验证工具的适当维度显著相关。总的来说,孩子和父母的反应之间存在显著的相关性。诊断组之间的比较显示出几个显著差异。身材矮小组的生活质量最高,JCA组最低。有没有性别差异,但谁没有达到青春期的儿童得分更好的维度的心理健康和self-esteem.Conclusion:瑞典版的CHQ是一个可靠和有效的工具。此外,建议询问儿童自己与健康有关的生活质量。
Aim: 1) To assess the reliability and validity of the Swedish version of the Child Health Questionnaire (CHQ), 2) to determine the correlation between children's and parents' responses to the CHQ, and 3) to describe and compare responses to the CHQ of four diagnostic groups. Methods: A total of 199 Swedish children aged 9-16 with diagnoses of asthma (n = 53), diabetes (n = 48), short stature (n = 51) and juvenile chronic arthritis (JCA, n = 47) and their parents answered the CHQ and relevant validation instruments at a clinic check-up. Coefficient alphas were determined for all dimensions of the instrument, and all but four had acceptable to very good reliability (0.75-0.94). Results: Concerning construct validity, the CHQ correlated significantly with appropriate dimensions of the validation instruments. In general, there were significant correlations between the children's and parents' responses. Comparisons between the diagnostic groups showed several significant differences. The short stature group had the highest quality of life and the JCA group the lowest. There were no sex differences, but children who had not reached puberty scored better on the dimensions of mental health and self-esteem.Conclusion: The Swedish version of the CHQ is a reliable and valid instrument. Furthermore, it is recommended to ask children themselves about their health-related quality of life.