Towards a data sharing Code of Conduct for international genomic research.

Towards a data sharing Code of Conduct for international genomic research.
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DOI:
10.1186/gm262
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发表时间:
2011-07-14
期刊:
影响因子:
12.3
通讯作者:
Zawati MH
Zawati MH
中科院分区:
生物学1区
文献类型:
--
作者:
Knoppers BM;Harris JR;Tassé AM;Budin-Ljøsne I;Kaye J;Deschênes M;Zawati MH

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数据共享越来越被视为促进知识进步的伦理和科学要求,从而尊重参与者的贡献。由于这一点以及目前世界各地提交的数据访问请求的数量不断增加,三个小组决定制定针对国际基因组学合作研究背景的数据共享原则。这些组织是:国际基因组学公共人口项目(P3G),一个参与大规模遗传流行病学研究和生物库的国际项目联盟;欧洲遗传和基因组流行病学网络(ENGAGE),一个旨在将大规模流行病学研究计划的数据转化为相关临床信息的研究项目;卫生、法律和新兴技术中心(HeLEX)。我们提出了七项不同的原则和一项初步的国际数据共享行为准则,供正在进行的讨论。
Data sharing is increasingly regarded as an ethical and scientific imperative that advances knowledge and thereby respects the contributions of the participants. Because of this and the ever-increasing amount of data access requests currently filed around the world, three groups have decided to develop data sharing principles specific to the context of collaborative international genomics research. These groups are: the international Public Population Project in Genomics (P3G), an international consortium of projects partaking in large-scale genetic epidemiological studies and biobanks; the European Network for Genetic and Genomic Epidemiology (ENGAGE), a research project aiming to translate data from large-scale epidemiological research initiatives into relevant clinical information; and the Centre for Health, Law and Emerging Technologies (HeLEX). We propose seven different principles and a preliminary international data sharing Code of Conduct for ongoing discussion.
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发表时间: 2009-09-10
期刊: NATURE
影响因子: 64.8
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发表时间: 2009-07
影响因子: 4.4
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