They Lift My Spirit Up: Stakeholders' Perspectives on Support Teams for African Americans Facing Serious Illness
They Lift My Spirit Up: Stakeholders' Perspectives on Support Teams for African Americans Facing Serious Illness
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DOI：
10.1177/1090198114529591
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发表时间：
2014-12-01
影响因子：
4.2
通讯作者：
Corbie-Smith, Giselle
中科院分区：
文献类型：
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作者：
Jackson, LeRon C.;Hanson, Laura C.;Corbie-Smith, Giselle
背景资料。为癌症和其他严重疾病患者提供积极的社会和精神支持已被证明可以改善对疾病的心理适应和生活质量。目标。使用利益相关者访谈评估非裔美国人社区内的社区支持团队干预。方法：研究方法。支持小组成员是从非裔美国人教堂、社区组织和严重疾病患者的社会网络中招募的。支持小组为癌症和其他严重疾病患者提供实际的、情感的和精神上的护理。通过对47名利益相关者的半结构化访谈对干预进行了评估，其中包括那些患有严重疾病的人、支持团队志愿者、神职人员和医疗提供者。结果。利益相关者报告说，参加支持团队有多种好处；主题包括提供情感和精神支持，扩大对患者家人的支持，以及对医疗护理的补充支持。报告的参与障碍被按主题归类为希望保持独立感和正常感；志愿者的限制也被讨论为这种支持性护理模式的障碍。结论。这一定性评估提供了初步证据，表明支持小组的干预有助于满足患有癌症或其他严重疾病的非裔美国人的情感和精神需求。志愿人员支助小组值得进一步研究，以此作为改善面临严重疾病的人的生活质量的一种方式。
Background. Active social and spiritual support for persons with cancer and other serious illnesses has been shown to improve psychological adjustment to illness and quality of life. Objective. To evaluate a community-based support team intervention within the African American community using stakeholder interviews. Methods. Support team members were recruited from African American churches, community organizations, and the social network of individuals with serious illness. Support teams provided practical, emotional, and spiritual care for persons with cancer and other serious illness. The intervention was evaluated using semistructured interviews with 47 stakeholders including those with serious illness, support team volunteers, clergy, and medical providers. Results. Stakeholders report multiple benefits to participation in the support team; themes included provision of emotional and spiritual support, extension of support to patients' family, and support complementary to medical care. Reported barriers to participation were grouped thematically as desiring to maintain a sense of independence and normalcy; limitations of volunteers were also discussed as a barrier to this model of supportive care. Conclusions. This qualitative evaluation provides initial evidence that a support team intervention helped meet the emotional and spiritual needs of African American persons with cancer or other serious illness. Volunteer support teams merit further study as a way to improve quality of life for persons facing serious illness.