Spirituality and the Illness Experience: Perspectives of African American Older Adults.
Spirituality and the Illness Experience: Perspectives of African American Older Adults.
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灵性和疾病经验：非裔美国老年人的观点。
DOI：
10.1177/1049909120988280
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发表时间：
2021-06
期刊：
影响因子：
--
通讯作者：
Fischer SM
中科院分区：
文献类型：
--
作者：
Siler S;Arora K;Doyon K;Fischer SM
非裔美国人在临终关怀和姑息治疗(PC)方面的差异与对医疗体系的不信任、种族不平等和文化偏好有关。灵性已被认为对总体上的非裔美国人很重要。关于灵性对非裔美国人疾病经历的影响，人们知之甚少。这项研究的目的是了解老年非裔美国人对灵性如何影响慢性病经历的观点，以指导文化定制PC干预的发展。我们与丹佛地区的5个教堂合作，对50名患有慢性病的非裔美国老年人和他们的家庭照顾者进行了焦点小组。用演绎的方法对成绩单进行分析。本研究的理论框架借鉴了宗教心理学的研究成果。主题涉及参与者的精神导向系统、精神应对策略和精神应对方式。心理-精神斗争、社会斗争和社会支持来源也被确定。研究结果表明，非裔美国人的灵性会影响慢性病的经历。参与者依靠他们的灵性和教会社区来帮助他们应对疾病。此外，社会斗争影响了疾病体验。社会斗争包括对医疗体系的不信任，以及与足够的资源没有联系。与会者表示，有必要为自己和家庭成员提供更好的医疗保健。教堂被认为是卫生资源以及精神和社会支持的可信空间。
Disparities in hospice and palliative care (PC) for African Americans have been linked to mistrust toward the healthcare system, racial inequalities, and cultural preferences. Spirituality has been identified as important to African Americans in general. Less is known about the influence of spirituality on African American illness experiences. The goal of this study was to understand older African Americans’ perspectives on how spirituality influences chronic illness experiences to inform the development of a culturally tailored PC intervention. In partnership with 5 churches in the Denver metropolitan area, we conducted focus groups with African American older adults (n = 50) with chronic health conditions and their family caregivers. Transcripts were analyzed using a deductive approach. The theoretical framework for this study draws on psychology of religion research. Themes referenced participants’ spiritual orienting systems, spiritual coping strategies, and spiritual coping styles. Psycho-spiritual struggles, social struggles, and sources of social support were also identified. Findings suggest African Americans’ spirituality influences chronic illness experiences. Participants relied on their spirituality and church community to help them cope with illness. In addition, social struggles impacted the illness experience. Social struggles included mistrust toward the healthcare system and not being connected to adequate resources. Participants expressed a need to advocate for themselves and family members to receive better healthcare. Churches were referred to as a trusted space for health resources, as well as spiritual and social support.
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影响因子：
3.2
作者：
Hsieh, HF;Shannon, SE
通讯作者：
Shannon, SE
临终治疗偏好：在预先护理计划中减少种族/种族差异的关键？
影响因子：
6.2
作者：
Garrido, Melissa M.;Harrington, Shannon T.;Prigerson, Holly G.
通讯作者：
Prigerson, Holly G.
影响因子：
2.8
作者：
Ferrell, Betty R.;Twaddle, Martha L.;Meier, Diane E.
通讯作者：
Meier, Diane E.
影响因子：
4.7
作者：
Fischer, Stacy M.;Cervantes, Lilia;Kutner, Jean S.
通讯作者：
Kutner, Jean S.
影响因子：
4.2
作者：
Jackson, LeRon C.;Hanson, Laura C.;Corbie-Smith, Giselle
通讯作者：
Corbie-Smith, Giselle