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A voice to the voiceless: Longitudinal patient-reported outcomes, experiences, social determinants of health and health services utilization after major neonatal surgery

A voice to the voiceless: Longitudinal patient-reported outcomes, experiences, social determinants of health and health services utilization after major neonatal surgery
向无声者发出声音：重大新生儿手术后患者纵向报告的结果、经历、健康和卫生服务利用的社会决定因素
批准号：
478053
负责人：
Poenaru Dan
金额：
$39.85万
依托单位：
Research Institute of the McGill University Health Centre
依托单位国家：
加拿大
项目类别：
Operating Grants
财政年份：
2023
资助国家：
加拿大
项目状态：
未结题
起止时间：
2023-03-01 至 2027-03-01
来源：
https://webapps.cihr-irsc.gc.ca/decisions/p/project_details.html?applId=478053&lang=en
关键词：
Childhood And Adolescence Congenital Surgery Health Services Utilization Health-Related Quality Of Life Patient-Centered Care Patient-Reported Experiences Patient-Reported Outcomes Social Determinants Of Health Transitions In Care

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中文摘要
翻译
每100个孩子中就有一个出生时有严重的畸形，需要手术。通过新生儿和手术护理的进步，这些儿童中的大多数现在都能在紧急，高风险的手术中幸存下来，并有正常的预期寿命-但通常患有长期疾病。
英文摘要
One child in a hundred is born with a major birth anomaly requiring surgery. Through advances in newborn and surgical care, most of these children now survive the urgent, high-risk surgery and have a normal life expectancy - but often suffer from long-sta
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