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Developing a Doorway to Accessible Supportive Care Resources for Parents of Seriously Ill Children: An Innovative Pediatric Palliative Care ePortal

Developing a Doorway to Accessible Supportive Care Resources for Parents of Seriously Ill Children: An Innovative Pediatric Palliative Care ePortal
为重病儿童的父母开发一个获取支持性护理资源的途径：创新的儿科姑息治疗电子门户
批准号：
411999
负责人：
Bally Jill M
金额：
$0.73万
依托单位：
University of Saskatchewan
依托单位国家：
加拿大
项目类别：
Miscellaneous Programs
财政年份：
2019
资助国家：
加拿大
项目状态：
已结题
起止时间：
2019-09-01 至 2020-09-01
来源：
https://webapps.cihr-irsc.gc.ca/decisions/p/project_details.html?applId=411999&lang=en
关键词：
Digital Health Family-Focused Care Hope Science Life Limiting Illness Life Threatening Illness Pediatric Health Care Pediatric Palliative Care Portal

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中文摘要
翻译
严重的儿童疾病会扰乱家庭生活和幸福。在加拿大，每年有1400多名需要复杂治疗的儿童接受专门的儿科姑息治疗。然而，许多其他的孩子和家庭并没有获得这样的特殊
英文摘要
Serious childhood illness disrupts family life and wellbeing. In Canada, over 1400 children with complex treatment needs receive specialized pediatric palliative care every year. However, many other children and families do not have access to such special
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