A fundamental study on the Illness Trajectory of Patients with Parkinson's Disease and Families

本研究对帕金森病患者及其家属进行了纵向访谈，定性地分析了他们对疾病经历的叙述。结果发现，在疾病轨迹的早期阶段，患者和家属在正确诊断和接受疾病方面存在困难。当病人努力克服困难时，生命史的工作尤为重要。我们还发现，患者和家人有时会在应对症状的方法上发生冲突。疾病轨迹的研究需要长期的努力，还需要不断的研究。

In this study, we had longitudinal interview on Parkinson’s disease patient and family, and qualitatively analyzed their narratives of illness experience. As a result, we found there were difficulties for patient and family in having proper diagnosis and accepting the disease in the early stage of illness trajectory. The work of life-history was especially important when the patient strived to overcome the difficulties. We also found that patient and family sometimes came into collision on thoughts about way to cope with symptoms. Illness trajectory research requires long-term efforts and there still needs continuous study.