Program 10 Cancer Care Delivery Research

癌症护理服务研究计划 项目摘要/摘要 癌症护理提供研究(CCDR)计划的使命是促进和开展以下研究 确保为所有类型的癌症患者提供高质量、以患者为中心的护理。最新进展 癌症的诊断、筛查、预防和治疗通常在定义和报告的 相对较小的研究对象小组。CCDR计划成员衡量以下方面的程度 当所报告的进展是在全人口范围内衡量时，干预措施是有效的。该计划的开发， 改进、测试和实施策略，以最大限度地提高发现的影响。一个特别的重点 是研究发现的益处延伸到种族和少数民族患者的程度 背景和那些社会经济上处于不利地位的人。 该方案有66名成员(56名主要成员和10名次要成员)，代表所有7个DF/CC机构和 12个学术部门。2019年，用于该方案的同行审查赠款资金为510万美元 NCI的直接成本和其他赞助商的770万美元。在本供资期间，初级 CCDR成员发表了1336篇癌症相关论文。其中，25%是跨机构的，23%是 方案内，39%是两个或更多DF/CC成员之间的方案间协作。 CCDR强调改善癌症护理的体验、效率和公平性，确保创新 在癌症治疗和护理方面，在整个人群和护理环境中充分发挥其潜力。为了满足 项目使命，CCDR成员建立了成功的合作，开发了新的研究方法， 建设数据源，培养新一代临床研究人员。我们的具体目标是 CCSG的下一个资助期是：1)评估新的和已建立的 治疗癌症的干预措施，重点是通过(A)设计临床信息学的精准医学 改善癌症护理服务的战略和(B)提高提供精确医疗服务的能力；2) 评估以患者为中心的癌症护理结果，包括与健康相关的生活质量和症状负担 通过开发评估患者体验的工具；3)评估医疗改革的影响，包括 关于癌症筛查、诊断、治疗和治疗的替代交付、覆盖和报销系统 结果；以及4)制定和测试策略，以改善以下患者的姑息和临终关怀(EOL)体验 晚期癌症患者及其家属。

Cancer Care Delivery Research Program Project Summary / Abstract The mission of the Cancer Care Delivery Research (CCDR) Program is to facilitate and conduct research that ensures the delivery of high-quality, patient-centered care to individuals with all types of cancer. Advances in cancer diagnosis, screening, prevention, and treatment are usually tested and reported in defined and relatively small groups of research subjects. Members of the CCDR Program measure the extent to which interventions are effective when the reported advances are scaled population-wide. The Program develops, refines, tests, and implements strategies to maximize the impact of discoveries. A particular point of emphasis is the degree to which the benefits of research discoveries extend to patients from racial and ethnic minority backgrounds and to those who are socioeconomically disadvantaged. The Program has 66 members (56 primary and 10 secondary), representing all seven DF/HCC institutions and 12 academic departments. In 2019, peer-reviewed grant funding attributed to the Program was $5.1 million in direct costs from the NCI and $7.7 million from other sponsors. During the current funding period, primary CCDR members published 1,336 cancer relevant papers. Of these, 25% were inter-institutional, 23% were intra-programmatic, and 39% were inter-programmatic collaborations between two or more DF/HCC members. CCDR’s emphasis on improving the experience, efficiency, and equity of cancer care ensures that innovations in cancer treatment and care realize their full potential throughout populations and care settings. To meet the Program mission, CCDR members have built successful collaborations, developed new research methods, constructed data sources, and trained the next generation of clinical investigators. Our Specific Aims for the next CCSG funding period are to: 1) Assess the quality, effectiveness, and value of new and established interventions to treat cancer, with an emphasis on precision medicine by (a) designing clinical informatics strategies to improve cancer care delivery and (b) promoting capacity for delivering precision medicine; 2) Evaluate patient-centered outcomes of cancer care, including health-related quality of life and symptom burden by developing tools to assess the patient experience; 3) Assess the impact of healthcare reform, including alternative delivery, coverage, and reimbursement systems on cancer screening, diagnosis, treatment, and outcomes; and 4) Develop and test strategies to improve palliative and end of life care (EOL) experiences for advanced cancer patients and their families.