Building Tribal Capacity through Informing the Development of Tribal Research Codes to Govern Genomic Research: A Collaboration between Cherokee Nation and the University of Oklahoma
Building Tribal Capacity through Informing the Development of Tribal Research Codes to Govern Genomic Research: A Collaboration between Cherokee Nation and the University of Oklahoma
批准号:
10438445
负责人:
Jessica Blanchard
金额:
$30.52万
依托单位:
依托单位国家:
美国
项目类别:
财政年份:
2022
资助国家:
美国
项目状态:
未结题
起止时间:
2022-09-20 至 2026-07-31
关键词:
AddressAgreementAlaska NativeAmerican IndiansAttentionBiologicalBiomedical ResearchBiotechnologyCherokee IndianCodeCollaborationsCollectionCommunitiesConsultDataDevelopmentEmployeeEquipment and supply inventoriesEthicsFaceFoundationsFundingGenomicsGoalsHealthIndigenousInformation SystemsInstitutional Review BoardsLegalNCI Scholars ProgramNative American Research Center for HealthOklahomaOwnershipPersonsPoliciesPolicy ResearchProceduresProtocols documentationRADx Underserved PopulationsRegulationResearchResearch InfrastructureResearch PersonnelResearch TrainingResourcesRightsRoleSamplingSelf DeterminationSeriesServicesShapesSpecimenStructureStudentsTimeTrainingTribesUniversitiesWorkbeanbiobankbiological researchcohortdata sharingdesignethical legal social implicationinnovationinterestmeetingsmemberprecision medicineprogramsresearch and developmenttraining opportunitytribal Nation
中文摘要
项目摘要
不断变化的基因组研究格局和新生物技术的出现呈现
以协作方式提高部落研究能力的机会,反映主权数据做法和
充满活力的部落利益。这项提议建立在切诺基民族和
俄克拉荷马大学(OU)研究人员致力于解决部落国家的伦理、法律和社会问题
面对基因组研究在其社区中不断变化的角色,并促进培训
AI/AN学生攻读基因组学和健康相关领域的研究。我们建议通知
制定一套部落研究代码,以管理基因组学和其他涉及生物医学的生物医学研究
切罗基民族的标本。
英文摘要
Project Summary
The changing landscape of genomic research and the emergence of new biotechnologies presents
opportunities to grow tribal research capacity in collaborative ways that reflect sovereign data practices and
dynamic tribal interests. This proposal builds on a record of collaboration between Cherokee Nation and
University of Oklahoma (OU) researchers that addresses the ethical, legal and social questions tribal nations
face as they navigate the changing role of genomic research in their communities, and promotes training of
AI/AN students to pursue research in genomics and health related fields. We propose to inform the
development of a set of tribal research codes to govern genomics and other biomedical research involving bio-
specimens for Cherokee Nation.
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Building Tribal Capacity through Informing the Development of Tribal Research Codes to Govern Genomic Research: A Collaboration between Cherokee Nation and the University of Oklahoma
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批准号:10707073
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项目类别:
-
资助金额:$28.91万
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财政年份:2022
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负责人:Jessica Blanchard
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依托单位:
海外基金