DES--NORTHEAST EDUCATION AND OUTREACH

这个与国家癌症研究所合作项目的目标是 国家儿童健康和人类发展研究所 提高认识和知识水平，改变态度， 关于接触己烯雌酚（DES）及其 在目标公众和医疗专业受众中的影响 东北地区，以及改善早期发现，诊断， 治疗与暴露于DES相关的几种医疗状况。 干预地点将在纽约长岛。 的目标群体 教育包括（1）个人谁知道他们已经 暴露于DES（包括通过DES入组确定的患者 登记研究、队列研究或相关组织，以及其他 通过DES登记研究、队列研究或 相关组织，以及通过这一点确定的其他组织， （2）不知道自己暴露于DES的个人;以及（3） 可能接触DES暴露的卫生专业人员 个体 拟议项目将包括以下活动： (1)成立一个由医学专家和消费者组成的小组 由医学专家组成的代表，健康教育 专家和消费者代表（DES癌症网络和DES 儿子），以制定最先进的标准，诊断和护理DES 并监督传播标准的工作 （2）对护理样本进行基线和后续调查， 三个目标受众提供有关现有 提高认识、知识、做法和认识到的障碍， 纳入干预措施，并提供数据， （3）在这些群体中采取干预措施的有效性; 设立一条DES热线，供公众使用， 社区和遗嘱都是身份识别的工具， （4）新发现的DES个人的转介;（4）评估 高强度干预与低强度干预的相对有效性， DES暴露的个人和医疗保健专业人员， 纳入过程评价措施，以更好地评估 干预措施的有效组成部分;（5）制定一套 这些材料将作为 （6）与医疗机构建立联系。 学校、公共卫生部门和社区组织， 将使这些DES教育工作的继续后， 融资期。 本拟议项目建立在大量专门知识的基础上 由多学科调查小组提供， 组装好了

The goal of this collaborative project with the National Cancer Institute and the National Institute of Child Health and Human Development is to raise levels of awareness and knowledge, change attitudes, and to reduce barriers to action regarding exposure to diethylstilbestrol (DES) and its consequences among targeted public and medical professional audiences in the Northeast, as well as to improve early detection, diagnosis, and treatment for several medical conditions associated with exposure to DES. Intervention sites will be on Long Island, New York. Target groups for education include (1) individuals who are aware that they have been exposed to DES (including those identified through enrollment in DES registries, cohort studies or relevant organization, as well as others identified through enrollment in DES registries, cohort studies or relevant organizations, as well as others identified through this project); (2) individuals unaware of their exposure to DES; and (3) health professionals who are likely to have contact with DES exposed individuals. The proposed project will include the following activities: (1) the formation of a panel of medical experts and consumer representatives consisting of medical experts, health education specialists, and consumer representatives (DES Cancer Network, and DES Sons) to devise state of the art standards for diagnosis and care for DES exposed individuals and to oversee efforts to disseminate the standards of care; (2) the conduct of baseline and follow-up surveys of samples of the three target audiences to provide information concerning existing levels of awareness, knowledge, practices and perceived barriers to be incorporated into the interventions and provide data for evaluating the effectiveness of interventions in each of these groups; (3) the establishment of a DES hotline which will be available for the public in both communities and wills serve as a vehicle for identification and referral of newly identified DES individuals; (4) the evaluation of the relative effectiveness of high versus low intensity interventions for both DES exposed individuals and health care professionals, with the inclusion of process evaluation measures to better assess the most effective components of the interventions; (5) the production of a set of educational materials which will serve as a basis for the interventions; and (6) the establishment of linkages with medical schools, Departments of Public health, and community organizations that will enable the continuation of these DES education efforts after the funding period. This proposed project builds on substantial expertise provided by the multidisciplinary team of investigators that has been assembled.