AIDS CAREGIVING--ROLE OF INFORMAL AND FORMAL SUPPORTS

描述(改编自摘要)：尽管出现了一种新的 有希望的药物的产生，如蛋白酶抑制剂，艾滋病仍在继续 成为一个严重的公共卫生问题。随着艾滋病从一个急性的 从疾病到慢性病，它让个人承担更多的责任 支持系统提供长期援助。减少不利因素 后果，并使社区生活成为可能，在此应用程序中 对于第一个奖项，首席调查员建议进行一项研究，以审查 艾滋病患者及其家属的照护经验和需求 非正式照顾者(CG)。这项研究的目的是检查压力。 和应对进程以及非正式和正式支助对 受试者和受试者的心理健康状况。在拟议的为期60个月的研究中 研究人员将利用压力和应对理论框架来 考察背景特征、应激源、 主持人(应对和社会支持，包括非正式和正式的 支持)以及残疾人士和社区服务人员的心理健康。面对面 将对150对患有艾滋病的男同性恋者和 他们的主要非正式指挥官。此外，对25对患有 艾滋病及其主要非正式照顾者也将被包括在内，以探索 开展妇女艾滋病护理工作的可行性研究和探索 模型对这一群体的适用性。主要的实质性内容 研究的贡献将是：(1)纳入以下观点 PWAS和CGs都能理解压力和应对过程以及 和护理支持的影响；(2)确定与 利用非正式和正式的支持系统；(3)探索 这些护理系统与心理健康之间的关系 以及(4)开发有助于 对设计适当的以社区为基础的服务具有重要意义 支持非正式的照顾。

DESCRIPTION (adapted from the Abstract): Despite the advent of a new generation of promising drugs, such as protease inhibitors, AIDS continues to be a serious public health problem. As AIDS changes from an acute disease to a chronic illness, it places increased responsibility on personal support systems to provide long-term assistance. To reduce adverse consequences and make living in the community possible, in this application for a FIRST award the Principal Investigator proposes a study to examine the caregiving experiences and needs of both persons with AIDS (PWAs) and their informal caregivers (CGs). The goal of this research is to examine stress and coping processes and the impact informal and formal supports on the psychological well-being of PWAs and CGs. In the proposed 60-month study the researchers will utilize a stress and coping theoretical framework to examine the relationship between background characteristics, stressors, moderators (coping and social support including informal and formal supports) and the psychological well-being of PWAs and CGs. Face-to-face interviews will be conducted with 150 pairs of gay men who have AIDS and their primary informal CGs. In addition, a sample of 25 pairs of women with AIDS and their primary informal caregivers will also be included to explore the feasibility of studying AIDS caregiving among women and to explore the applicability of the model for this group. The primary substantive contributions of the research will be to (1) incorporate the perspectives of both PWAs and CGs to understand stress and coping processes and the nature and impact of caregiving supports; (2) identify factors that are associated with the utilization of informal and formal support systems; (3) explore the relationship between these systems of care and the psychological well-being of PWAs and CGs; and (4) develop information that will contribute significantly to the design of appropriate community-based services supporting informal caregiving.