AIDS CAREGIVING--ROLE OF INFORMAL AND FORMAL SUPPORTS

描述（改编自摘要）：尽管出现了新的 一代有前途的药物，如蛋白酶抑制剂，艾滋病继续 是一个严重的公共卫生问题。随着艾滋病从急性 从一种疾病到一种慢性病，它增加了个人的责任， 支持系统提供长期援助。减少不良反应 在这个应用程序中， 对于第一个奖项，首席研究员提出了一项研究，以检查 了解艾滋病患者及其 非正式护理人员（CG）。这项研究的目的是检查压力 非正式和正式支助对发展中国家 PWA和CG的心理健康。在为期60个月的研究中， 研究人员将利用压力和应对理论框架， 检查背景特征、压力源， 主持人（应对和社会支持，包括非正式和正式 支持）和PWA和CG的心理健康。面对面 将对150对患有艾滋病的男同性恋者进行采访， 他们的主要非正式CG。此外，25对女性的样本， 艾滋病及其主要非正式照顾者也将被纳入探讨 研究妇女艾滋病传播的可行性，并探讨 模型对这一群体的适用性。主要实质性 研究的贡献将是（1）纳入的观点， PWA和CG了解压力和应对过程及其性质 （2）确定与支持有关的因素; （3）利用非正式和正式的支持系统; 这些护理系统与心理健康之间的关系 PWA和CG;以及（4）开发有助于 对设计适当的社区服务具有重要意义 支持非正式协商。

DESCRIPTION (adapted from the Abstract): Despite the advent of a new generation of promising drugs, such as protease inhibitors, AIDS continues to be a serious public health problem. As AIDS changes from an acute disease to a chronic illness, it places increased responsibility on personal support systems to provide long-term assistance. To reduce adverse consequences and make living in the community possible, in this application for a FIRST award the Principal Investigator proposes a study to examine the caregiving experiences and needs of both persons with AIDS (PWAs) and their informal caregivers (CGs). The goal of this research is to examine stress and coping processes and the impact informal and formal supports on the psychological well-being of PWAs and CGs. In the proposed 60-month study the researchers will utilize a stress and coping theoretical framework to examine the relationship between background characteristics, stressors, moderators (coping and social support including informal and formal supports) and the psychological well-being of PWAs and CGs. Face-to-face interviews will be conducted with 150 pairs of gay men who have AIDS and their primary informal CGs. In addition, a sample of 25 pairs of women with AIDS and their primary informal caregivers will also be included to explore the feasibility of studying AIDS caregiving among women and to explore the applicability of the model for this group. The primary substantive contributions of the research will be to (1) incorporate the perspectives of both PWAs and CGs to understand stress and coping processes and the nature and impact of caregiving supports; (2) identify factors that are associated with the utilization of informal and formal support systems; (3) explore the relationship between these systems of care and the psychological well-being of PWAs and CGs; and (4) develop information that will contribute significantly to the design of appropriate community-based services supporting informal caregiving.