Fylde Coast Research Consortium

我们是一个由各行各业的人组成的团队，他们有着共同的愿景，即改善我们在Fylde海岸和其他沿海社区的社区福祉。与内陆邻国相比，沿海社区继续面临越来越大的精神和身体健康挑战，导致预期寿命较低，许多主要疾病的发病率较高（首席医疗官年度报告，2021年）。有许多众所周知的因素导致了沿海地区的健康不平等，包括贫困、住房条件差和低工资经济（Marmot，2005年;威廉姆斯和巴克，2020年）。所有这些都增加了对过度紧张的保健服务的需求。尽管如此，专门针对沿海社区的大规模研究仍然很少。众所周知，VCFSE部门提供的基于社区的支持有可能减轻公共卫生服务的负担，这在Covid-19大流行期间尤为重要（Stansfield等人，2020年）。VCFSE组织接近社区，他们拥有与社区中最弱势成员合作的技能和经验，这些成员通常被认为是“难以接触”，他们可以灵活地应对社区需求并提供有效的干预措施（卫生部，2008年;地方政府协会，2017年; Allison，2010年）。然而，在委托过程中存在障碍，例如缺乏财政资源，以及评估策略中的挑战，例如有限的评估知识，技术能力和相关成果指标的知识，这使得这些组织难以得到认可，其重要工作难以持续（Bach-Mortensen &蒙哥马利，2018）。我们将通过团结公众，社区从业者和Fylde海岸的专员来动员我们社区的资产，共同努力，改善伙伴关系，服务提供和研究。要做到这一点，我们首先需要了解该地区目前正在提供什么;因此，我们将制定并尽可能广泛地参与以社区为基础的支持提供者。我们将建立和检验一个共同工作的模式。这一模式将包括三个共同制作小组;每个小组将专注于一项具体任务，并致力于实现同样重要的目标。这些小组将由具有学科或经验的相关专业知识的共同研究人员领导。第一组将联合现场经验专家和从业者，将使用创造性的方法（例如，PhotoVoice）设想一个社区中心的未来，它可以整合更广泛的基于社区的支持，以满足社区的需求。其目的是使生活经验的专家成为自己的护理提供的“塑造者和制造者”，而不是“用户和选择者”（康沃尔和Gaventa，2000年）。第2组将为公共和VCFSE部门支持提供商提供专用空间，以讨论跨部门合作伙伴关系的主要障碍，共同制定克服这些障碍的行动计划，并建立共同的目标，愿景和语言。第三组将被称为研究联盟，并将联合关键利益相关者，包括现场体验专家。他们将对沿海社区健康状况不佳的主要驱动因素进行快速咨询审查，从第1组和第2组学习，共同制定五年研究计划，并建立综合研究基础设施（即数据共享协议，数据仓库，核心成果措施）使他们能够进行研究，使Fylde海岸及其他地区的人们受益。与此同时，将定期举办公开研究讲习班，以建立社区的研究能力。我们将使用社交网络分析来测试我们的活动对网络模式的影响。我们将与包括黑斯廷斯在内的其他沿海社区建立联系，这些社区具有相似的特征和健康成果，以分享学习并为未来的合作奠定基础。

We are a team of people from all walk of life with a shared vision of improving wellbeing for our community on the Fylde coast and for other coastal communities. Coastal communities continue to have more and greater mental and physical health challenges, resulting in lower life expectancy and higher rates of many major diseases compared to their inland neighbours (Chief Medical Officer's Annual Report, 2021). There are a number of well-known factors that contribute to health inequalities in coastal regions, including deprivation, poor housing, and a low-wage economy (Marmot, 2005; Williams & Buck, 2020). All of these place increased demand on overstretched health services. Despite this, large-scale research focusing specifically on coastal communities is scarce. It is known that community-based support delivered by the VCFSE sector has the potential to reduce the burden on public health services, which has been especially important during the Covid-19 pandemic (Stansfield et al., 2020). VCFSE organisations are close to communities, they have skills in and experience of working with the most disadvantaged members of the community often considered 'hard to reach', they have the flexibility to respond to community needs and deliver effective interventions (Department of Health, 2008; Local Government Association, 2017; Allison, 2010). However, there are barriers in the commissioning process, e.g. lack of financial resources, and challenges in the evaluation strategies, e.g. limited evaluation literacy, technical capability, and knowledge of relevant outcome indicators, which makes it difficult for these organisations to be recognised and for their important work to become sustainable (Bach-Mortensen & Montgomery, 2018). We will mobilise our community's assets by uniting members of the public, community-based practitioners, and commissioners on the Fylde Coast to work together and improve partnership, service provision, and research. To do this, we first need to understand what is currently being delivered in the area; and so we will map out and engage the fullest possible range of community-based support providers. We will establish and test a model of working together. This model will include three co-production groups; each will focus on a specific task and work towards equally important aims. These groups will be led by co-researchers with relevant expertise by discipline or experience. Group 1 will unite lived-experience experts and practitioners, will use creative methods (e.g., PhotoVoice) to imagine the future of a community-hub that can integrate a broader range of available community-based support in response to the needs of the community. The aim is to enable lived-experience experts to become 'shapers and makers' of their own care provision rather than 'users and choosers' of it (Cornwall & Gaventa, 2000). Group 2 will provide a dedicated space for the public and VCFSE sector support providers to discuss the key barriers to cross-sector partnership working, co-produce an action plan to overcome these barriers, and establish shared goals, vision, and language. Group 3 will be called the Research Consortium, and will unite key stakeholders, including lived-experience experts. They will conduct a consultative rapid review on main drivers of ill-health in coastal communities, learn from Group 1 and 2, co-produce a five-year research plan, and establish an integrated research infrastructure (i.e. data sharing agreements, data warehouse, core outcome measures) enabling them to conduct research that will benefit people on the Fylde Coast and beyond. In parallel, regular open research workshops will be held to build research capacity in the community. We will test the impact of our activities on network patterns using social network analysis. We will connect with other coastal communities, including Hastings, with similar characteristics and health outcomes to share learning and lay the foundations of future collaborations.