Youth LIVES: Youth LIVed experience in Evidence Synthesis

我们的方法我们将把公民科学（育儿科学帮）的激进合作模式扩展到青少年心理健康的优先领域。我们将展示创新的公民科学方法如何改变有生活经验的人告知证据合成工作的方式。与迄今为止在综合研究中常见的由研究人员主导的离散贡献不同，该项目将采用青年主导的方法。这项研究将在Cochrane常见精神障碍（CCMD）小组进行，通过将该方法直接嵌入证据合成组织来确保直接影响，并为在全球Cochrane审查小组网络中传播成功的学习提供途径。我们的方法将是促进青年公民科学家和学者之间的伙伴关系，支持这两个群体共同努力，产生有意义和高质量的研究成果。我们将利用我们在公民科学、参与式共同设计以及耐心和公众参与研究方面的专业知识，促进有意义的合作生产。我们将与我们的合作伙伴——精神健康基金会（Mental Health Foundation）和Leaders Unlocked合作，确保采用包容的方法，让有精神健康需求的不同群体的年轻人参与进来，在各个部门分享学习成果，并在政策和慈善网络中交流学习成果。证据综合是循证医学的基石，在强制改变政策和实践以及指导未来研究方面发挥着关键作用。然而，迄今为止，那些有实际经验的人对证据合成的投入是有限的。这不仅限制了那些有实际经验的人的贡献，也限制了所产生的评论的相关性、有效性和可信度。年轻人作为生活经验的贡献者尤其容易被忽视，因为人们认为他们理解和影响研究的能力较弱。当年轻人参与研究时，在研究中分享权力和责任对研究人员来说尤其具有挑战性。我们将积极促进青年和学者之间的伙伴关系，支持双方建设性地合作，并认可他们的专长互补。我们将支持他们使用参与式共同设计方法，赋予生活经验知识特权，并鼓励更容易获得和集体的工作方式（例如使用视觉或叙事材料）。工作包：第一阶段（6个月）：招募青年公民科学家和心理健康专家问答，以提高年轻人的认识和理解。WP2（6个月）：组建青年研究团队，优先考虑自己的研究问题。快速审查问题，过滤问题到WP3, 4或5。WP3发现-来自uy心理健康研究网络的团队和研究人员协作设计初步研究，以解决证据差距。WP4理解- CCMD的团队和研究人员协作更新或生成新的证据评论，以了解已知的内容以及可以为实践和未来研究提出的建议。WP5沟通- CCMD现有证据审查的团队和研究作者合作设计了以青年为重点的传播战略，并产生了新的知识动员产出，以更好地沟通研究成果。WP6：评估（36个月，贯穿始终）——形成性和总结性评估，以变革理论为指导，评估影响，捕捉障碍和促进因素，并产生新的公民科学学习，为未来的研究和实践提供信息。WP7：传播与维持（最后六个月）：在约克大学和全球Cochrane网络的早期职业研究人员中分配资源，分享最佳实践并建立公民科学的能力。

Our ApproachWe will expand a highly regarded model of radical coproduction from citizen science (the Parenting Science Gang) into the priority area of youth mental health. We will demonstrate how innovative citizen science methods can change the way that people with lived experience inform evidence synthesis work. Distinct from the researcher-led, discrete contributions that have been common in synthesis to date, the project will adopt a youth-led approach. The setting for this will be the Cochrane Common Mental Disorders (CCMD) group, ensuring direct impact through embedding the method directly into an evidence synthesis organisation, and providing an avenue for spreading successful learning across the global Cochrane review group network.Our approach will be to facilitate partnership working between youth citizen scientists and academics, supporting both groups to work together to produce meaningful and high-quality research outputs. We will draw across our expertise of citizen science, participatory codesign, and patient and public involvement in research to facilitate meaningful coproduction. We will work with our partners, the Mental Health Foundation and Leaders Unlocked, to ensure an inclusive approach involving diverse groups of young people with mental health needs, to share learning across sectors, and to communicate learning across policy and charity networks.The challenge Evidence synthesis is the bedrock of evidence-based medicine, performing a key role both in compelling changes to policy and practice and in steering future research. To date however the input of those with lived experience to evidence synthesis has been limited. As well as restricting the contributions of those with lived experience, this also limits the relevance, validity and credibility of the reviews produced. Young people can be particularly neglected as lived experience contributiors, due to assumptions that they have less capacity to understand and influence research. Sharing power and responsibility in research can be particularly challenging for researchers when young people are involved. We will actively facilitate partnerships between young people and academics, supporting both groups to work constructively together and recognise their complementary expertise. We will support them to use participatory codesign methods that privilege lived experience knowledge and encourage more accessible and collective ways of working (for example using visual or narrative materials).Work Packages:WP1 (6 months): Recruitment of youth citizen scientists and Mental Health Expert Q&A to raise young peoples' awareness and understanding.WP2 (6 months): Formation of Youth Research Teams to prioritise their own research questions. Rapid review of the questions to filter the questions to WP3, 4 or 5.WP3-5 run concurrently for 12-18 months:WP3 Discover - Teams and researchers from UoY mental health research networks collaboratively design primary research to address an evidence gap.WP4 Understand - Teams and researchers in CCMD collaboratively update or generate new evidence reviews to understand what is known and what recommendations can be made both for practice and for future research.WP5 Communicate - Teams and researcher authors of existing evidence reviews in CCMD collaboratively design a youth-focused dissemination strategy and produce new knowledge mobilisation outputs to better communicate the research findings. WP6: Evaluation (36 months, running throughout)- formative and summative evaluation, guided by Theory of Change, to assess impacts, capture barriers and facilitators, and generate new citizen science learning to inform future research and practice.WP7: Spread & Sustain (final six months): Distributing resources to share best practice and build capacity for citizen science amongst early career researchers at York and across the global Cochrane network.