The HAPPEE Partnership Project (Humanities and Arts in Preventing Pre-eclampsia complications through community Engagement and Education)

HapPee伙伴关系项目聘请了一个国际跨学科团队来创造一种新的专业组合，旨在让受先兆子痫影响的妇女和社区参与并赋予她们权力。HapPee将加强基于英国和LIC的研究、知识翻译和宣传。我们是人类学家、创意艺术家、作家、戏剧制作人、电影制作人、社会科学家、助产士、产科医生和健康倡导者。核心工作将是建立伙伴关系，加强英国和LIC的联系，并发展具有互补专业知识的新关系。HapPee寻求通过创意艺术通过社区参与更好地了解社会文化和宗教背景，以提高对先兆子痫及其并发症的教育和健康意识。我们的目标是了解当地在保健、怀孕和分娩方面的经验、优先事项和价值，以及它们与改善母亲和婴儿不良后果的相关性。先兆子痫是一种妊娠和产后特有的疾病，特征是高血压和母亲尿液中存在蛋白质。每天大约有830名妇女死于怀孕和分娩。先兆子痫是全世界孕产妇死亡的主要原因，每年导致6万名孕产妇死亡。几乎所有由先兆子痫引起的死亡都是可以预防的。因此，在英国死于子痫前期的几率现在不到百万分之一，然而全球每天仍有100多名妇女死于这种疾病。先兆子痫可能是不可预测的，而且进展迅速。严重的并发症包括高血压失控导致的子痫发作或中风、肾和肝脏功能障碍和凝血障碍，以及死产、发育受限的婴儿有脑瘫的风险。有效的管理包括及早识别并与妇女合作开始治疗。妇女的理解是实施这一战略的关键。HapPee项目分为三个主要阶段。伙伴关系的发展将贯穿所有阶段，并将通过当地和国际上的定期面对面会议和虚拟会议来促进。第一阶段涉及在津巴布韦和海地探索背景和开展定性工作。将在当地收集有关产妇保健结构的基线信息。每个国家将进行面对面的半结构化面谈和焦点小组。参与者可能包括以前患有先兆子痫的妇女、孕妇、新妈妈、男性和女性决策者、社区领袖、传统助产士、传统治疗师和当地医疗保健专业人员。将努力确保所有群体都有代表，即使是那些难以接触到的群体。其目的不仅是了解关于先兆子痫和子痫的筛查测试、症状、警告迹象或已知原因的知识水平，而且还探索获得适当护理的社会文化、历史和语言障碍。该项目的第二阶段涉及编写对文化敏感和针对具体情况的教育材料，以解决这些障碍。这些将在社区成员的直接投入下制定并共同制作。我们预计，这些活动可以是短片、动画或互动社区戏剧工作坊的形式。这次与创意艺术的合作将探索不同的媒介，作为一种接触社区的方式，调查他们的信仰，也作为传递健康意识信息的工具。HapPee项目第三阶段的重点将是落实津巴布韦和海地在当地创造的资源。这一阶段将包括来自妇女、家庭和医疗保健专业人员的最终用户反馈，并相应地对资源进行适当调整。HAPPEE致力于在研究社区和女性以及更广泛的社区之间建立一座桥梁，使想法、意见和学习能够流动。

The HAPPEE Partnership Project engages an international cross-disciplinary team to create a novel mix of expertise aiming to engage and empower women and communities affected by pre-eclampsia. HAPPEE will strengthen UK and LIC based research, knowledge translation and advocacy. We are anthropologists, creative artists, writers, theatre-makers, filmmakers, social scientists, midwives, obstetricians and health advocates. The core endeavour will be partnership building, strengthening UK and LIC links and developing new relationships with complementary expertise. HAPPEE seeks to better understand socio-cultural and religious contexts through community engagement via the creative arts to improve education and health awareness of pre-eclampsia and its complications. We aim to understand local experiences, priorities and values of health care, pregnancy and birth and their relevance for improving adverse outcome for mothers and babies.Pre-eclampsia is a disorder unique to pregnancy and the postpartum period, characterised by high blood pressure and the presence of protein in the mother's urine. Approximately 830 women die in pregnancy and childbirth everyday. Pre-eclampsia is a leading cause of maternal mortality worldwide and leads to 60,000 maternal deaths each year. Nearly all deaths due to pre-eclampsia are preventable. As such, the chance of dying from pre-eclampsia in the UK is now less than 1 in a million, however more than 100 women still die every day globally from this condition. Pre-eclampsia can be unpredictable and rapidly advancing. Severe complications include eclamptic seizures or stroke due to uncontrolled high blood pressure, kidney and liver dysfunction and blood clotting disorders as well as stillbirth, growth restricted babies with a risk of cerebral palsy. Effective management involves early recognition and initiation of treatments in partnership with women. Women's understanding is key to implementing this strategy.The HAPPEE project is divided into three main phases. Development of the partnership will overarch all phases and will be facilitated via regular face-to-face and virtual meetings locally and internationally. Phase 1 involves exploring context and undertaking qualitative work in Zimbabwe and Haiti. Baseline information will be collected regarding maternity care structures locally. Each country will undertake face-to-face semi-structured interviews and focus groups. Participants may include women previously affected by pre-eclampsia, pregnant women, new mothers, male and female decision makers, community leaders, traditional birth attendants, traditional healers and local healthcare professionals. Efforts will be made to ensure that all groups are represented, even those that are hard to reach. The aim is not only to scope levels of knowledge with respect to screening tests, symptoms, warning signs or perceived causes of pre-eclampsia and eclampsia but also to explore socio-cultural, historical and language barriers to accessing appropriate care. Phase 2 of the project involves the development of culturally sensitive and context specific educational materials to address these barriers. These will be developed with direct input from community members and coproduced. We envisage these may be in the form of short film, animations or interactive community theatre workshops. This collaboration with the creative arts will explore different medium as a way to engage communities, investigate their beliefs but also as vehicles to deliver health awareness messages. Phase 3 of the HAPPEE project will centre on implementing the resources created locally in Zimbabwe and Haiti. This phase will include end-user feedback from women, families and healthcare professionals with appropriate adjustments in the resources accordingly.HAPPEE seeks to create a bridge between the research community and women and the wider community enabling the flow of ideas, opinions and learning.