PBRN:NAMCS Project & Electronic Data from Patients

我们建议继续南方初级保健城市研究网络（spr - net），包括26个实践，239个初级保健提供者，每年的病人访问量为88.5万。这个以城市为基础的网络提供了一个实验室，用于评估提供给休斯敦（美国第0大城市）及其周边社区的大量社会经济和种族多样化人口的初级保健服务的有效性。该网络的独特之处包括少数族裔患者的显著代表性（非裔美国人、西班牙裔美国人和亚裔美国人）；纳入向缺医少药和无家可归者提供保健的诊所；各种提供者，包括家庭医生、普通内科医生和普通儿科医生；并由一个在利用电子病历进行研究以及在开发和评估卫生保健信息学和决策支持工具方面具有经验的研究小组参与。贝勒医学院家庭和社区医学系作为该网络的学术中心，与四个卫生保健组织合作：1)哈里斯县卫生区社区卫生中心；2)无家可归者医疗保健——休斯顿公司；Kelsey-Seybold诊所和Baylor家庭医学诊所。贝勒机构审查委员会对所有参与组织拥有审查权力。这项为期一年的持续拨款将用于AHRQ提出的网络定义研究，利用NAMCS调查工具，提供有关患者、提供者和接触的信息。该调查将在所有26个spr - net临床站点进行，对网络中的一部分医生进行抽样。此外，这项建议还要求经费进行一项与数据有关的特别研究项目，以管理界定网络的调查。在第二个项目中，我们建议评估一种便携式电子数据平板电脑，用于直接从患者那里收集调查数据。从这个项目中获得的知识应该推广到城市和农村环境中其他基于实践的研究网络。本研究的影响将是：1)描述spr - net的实践人口统计数据，2)提高PBRN以成本有效的方式直接从患者那里收集数据的能力，从而最大限度地减少医生的负担，以及3)从长远来看，通过建立我们的研究基础设施和数据库，提高我们网络中患者护理的质量。

We propose to continue the Southern Primary-care Urban Research Network (SPUR-Net), including 26 practices, 239 primary care providers, and an annual patient visit volume of 885,000. This urban- based network provides a laboratory for evaluating the effectiveness of primary care services delivered to the large, socio-economically and ethnically diverse population of Houston (the 0 largest city in the US) and its surrounding communities. Unique aspects of this network include a significant representation of minority patients (African American, Hispanic, and Asian American); inclusion of clinical sites providing health care to the underserved and the homeless; a variety of providers including family physicians, general internists, and general pediatricians; and involvement of a research team with experience in the use of electronic medical records for research and in developing and evaluating health care informatics and decision support tools. The Department of Family and Community Medicine, Baylor College of Medicine, serves as the academic hub for this network, with collaboration from four health care organizations: 1) Harris County Health District Community Health Centers; 2) Healthcare for the Homeless - Houston, Inc.; 3) Kelsey-Seybold Clinic and 4) the Baylor Family Medicine Clinic. The Baylor Institutional Review Board has review authority over all the participating organizations. This oneyear continuation grant will conduct the network-defining study proposed by AHRQ providing information about patients, providers and encounters, utilizing the NAMCS survey instrument. The survey will be conducted in all 26 SPUR-Net clinical sites, sampling a subset of physicians in the network. In addition, this proposal requests funds to conduct a special data-related research project for administering network-defining surveys. In this second project, we propose to evaluate a portable, electronic data tablet for gathering survey data directly from patients. The knowledge gained from this project should generalize to other practice-based research networks in both urban and rural settings. The impact of this study will be: 1) to describe the practice demographics of SPUR-Net, 2) to enhance the ability of PBRN's to gather data directly from patients in a cost effective manner that minimizes the burden on physicians, and 3) in the long term to improve the quality of patient care in our network through building upon our research infrastructure and database.