African-American Breast Cancer Survivor Quality of Life

描述(由申请人提供)： 问题陈述：关于乳腺癌非裔美国人幸存者的生活质量，人们知之甚少。之前的研究描绘了一幅喜忧参半的图景，一些研究表明，非裔美国人幸存者享有良好的生活质量水平，而另一些研究则表明存在重大问题。如果卫生保健提供者要满足非裔美国人幸存者的身体和心理社会需求，就需要关于这一群体治疗后生活质量的准确信息。 广泛目标：这项拟议的研究旨在作为旨在评估乳腺癌非裔美国人幸存者生活质量的更大研究计划的第一步。 具体目的：将非裔乳腺癌幸存者与白人乳腺癌幸存者以及无乳腺癌病史的非裔美国妇女在一系列生活质量测量上进行比较，并检验所提出的数据收集方法和生活质量测量工具的可行性。 设计和方法：非洲裔美国人和高加索人幸存者将通过肿瘤登记和来自两个城市机构的其他医疗记录进行识别。没有乳腺癌病史的非裔美国女性将通过熟人匹配程序进行识别。这项拟议的横断面研究将使用邮寄调查和电话采访数据收集程序相结合的方式，从三个比较组获得生活质量信息。在主要数据收集之前，将开展重点小组，以确定计划的数据收集工具的相关性和可接受性。全国有色人种促进会和全国黑人妇女委员会的地方部门，以及当地非洲裔美国人社区的著名倡导者，已经同意支持这项研究。将使用多变量方差分析程序对数据进行分析，以解决组之间的差异。

DESCRIPTION (provided by applicant): Statement of Problem: Relatively little is known concerning the quality of life of African-American survivors of breast cancer. Prior work paints a mixed picture, with some studies indicating that African-American survivors enjoy favorable levels of quality of life, while others suggest the presence of significant problems. If health care providers are to meet the physical and psychosocial needs of African-American survivors, accurate information about this group's post-treatment quality of life is needed. Broad Objective: The proposed study is intended as a first step in a larger program of research aimed at assessing quality of life of African-American survivors of breast cancer. Specific Aims: To compare African-American survivors of breast cancer to Caucasian survivors of breast cancer and to African-American women without a history of breast cancer on a series of quality of life measures and to test the feasibility of the proposed data collection methods and quality of life instruments. Design and Methods: African-American and Caucasian survivors will be identified using tumor registry and other medical records from two urban institutions. African-American women without a history of breast cancer will be identified using an acquaintance-matching procedure. The proposed, cross-sectional study will use a combination of mailed survey and telephone interview data collection procedures to obtain quality of life information from the three comparison groups. Before primary data collection, focus groups will be conducted to ascertain the relevance and acceptability of the planned data collection instruments. The local divisions of the National Association for the Advancement of Colored People and the National Council of Negro Women, as well as a well-known advocate for the local African-American community, have agreed to support the study. Data will be analyzed using multivariate analysis of variance procedures to address differences between groups.