Living well with multiple Long-Term Conditions: Interrogating young people's experiences of integrated care

背景：在综合护理模式下，年轻人经历多种长期疾病(LTC)的声音很少听到，当他们出现时，满意度报告为零星的。(NHS Digital 2018)。关于患有多个长期疾病的年轻人如何体验综合护理系统，以及他们如何能够(或不能)发展出强烈的凝聚感，这方面的研究仍然存在显著差距。目的：研究提案旨在回答以下研究问题：患有多种长期疾病的年轻人：是什么帮助他们在面对几种诊断时发展出一种连贯感，以及如何通过个人能力建设和服务重塑来发展这些维度？方法：本研究将把患有多个长期疾病的年轻人作为研究方法设计的顾问小组。研究方法将是定性的，将涉及两项通过3-4个全科医生实践进行的研究。第一项研究将对25名18-24岁的年轻人进行深入研究，他们生活在一个以上的LTC中。使用半结构化面对面访谈技术来确定关键主题，以回应研究问题。第二项研究将从每个被全科医生确定为管理其长期合作伙伴的做法中招募10名年轻人，并在使用参与性方法的小组中交叉核对新出现的主题，特别侧重于发展我们对是什么有助于培养他们的连贯感的理解。

Background:The voices of young people experiencing multiple long term conditions (LTCs) within integrated care models are rarely heard and when they are, satisfaction is reported as patchy. (NHS Digital 2018). There remains a significant gap in research concerning not only how young people with multiple LTCs experience integrated care systems, but how they are able (or not) to develop a strong Sense of Coherence.Aim:The research proposal aims to answer these research questions:Young people living with multiple long term conditions: What helps them to develop a Sense of Coherence in the face of several diagnoses and how could these dimensions be developed through individual capacity building and service remodelling?Method:This research will involve young adults with multiple LTCs as an advisory panel in the design of the research methodology. The research methodology will be qualitative and will involve two studies working through 3-4 GP practices. The first study will be an in-depth study of 25 young people aged 18-24 years living with more than one LTC. Using semi structured face-to-face interview techniques to identify key themes in response to the research questions. The second study will recruit 10 young people from each practice identified by GPs as managing their LTCs and, in groups using participatory methods, cross check emerging themes with a particular focus on developing our understanding of what has helped to develop their Sense of Coherence.