The development of a Core Outcome Set for evaluating the impact of Relationships and Sex Education with children with intellectual disability

从2020年9月起，两性关系和性教育（RSE）将成为英国所有学生的必修课，包括智障学生。与普通人群相比，患有ID的学生意外怀孕和性虐待的可能性是普通人的两倍。然而，对于如何为ID提供RSE，它的目的和目标应该是什么，或者有效的RSE实际上意味着什么，人们知之甚少。因此，迫切需要确定RSE对ID的重要结果。我建议通过制定“核心成果集”（COS）来做到这一点；我将与关键的利益相关者接触，并确定他们认为ID的RSE应该实现什么，因此在交付后应该衡量什么。我将进行：1)系统地检索文献，寻找目前用于ID的任何结果测量方法2)与关键利益相关者（ID学生，家长，教师，学校员工，政策制定者和专家研究人员）进行研讨会，以收集对每个群体有意义的潜在结果；3)在线调查，如果需要的话，还需要最后的研讨会，以便在利益相关者之间就COS内容达成共识；4)探索在繁忙的学校环境中，识别出的COS是否适用于有ID的学生。我的博士学位将为RSE在教育领域的成功实施、评估和可持续发展迈出重要的第一步。第一次有ID的学生将参与COS的发展，以确保他们的需求和意见被纳入RSE。

From September 2020, Relationships and Sex Education (RSE) will be compulsory in schools in Englandfor all pupils including those with intellectual disability (ID). Pupils with ID are twice as likely toexperience unintended pregnancies and sexual abuse compared to the general population. Yet little isknown on how to deliver RSE for ID, what its aims and objectives should be, or what effective RSEactually means. There is thus an urgent need to identify the important outcomes of RSE for ID. I proposeto do so by developing a 'Core Outcome Set' (COS); I will engage key stakeholders and identify what theythink RSE for ID should be achieving and therefore what should be measured after its delivery. I willundertake: 1) a systematic search of the literature looking for any outcome measures currently used withRSE for ID 2) workshops with key stakeholders (pupils with ID, parents, teachers, school staff,policymakers and expert researchers) to gather potential outcomes that are meaningful for each group;3) an online survey and if needed a final workshop, to reach consensus on the COS content acrossstakeholders; 4) exploration of whether the identified COS is usable with pupils with ID in a busy schoolenvironment. My PhD will contribute a significant first step in the successful implementation, evaluationand sustainability of RSE for education settings. Pupils with ID for the first time will be involved in thedevelopment of COS making sure their needs and opinions are incorporated in the RSE.