An interdisciplinary exploration of digital health technology for sufferers of Type 1 Diabetes

该研究项目将探索和阐明数字健康技术与1型糖尿病患者生活体验之间的关系。数字移动的健康技术的普及，如恒定血糖仪（CGM）和胰岛素泵，彻底改变了1型糖尿病患者的护理条件，从而大大改善了健康结果，更好地调节血糖水平，并可能降低Hba 1C水平，延长寿命并推迟由病情引起的合并症的发展。在临床结果之外，需要进行更深入的社会学调查，以了解通过皮下传感器，算法和界面增强，调解和定义存在状态的技术的可能性，以及残疾人/受损自我的新出现的主体性。我将在1型糖尿病患者的人种学观察研究中应用批判性社会理论和技术哲学，患者既是残疾人，也是依赖于算法解释和基于界面的身体状况表示的用户。我的研究集中在三个支柱：作为技术混合体的受损/残疾自我，作为了解，解释和表达存在的亲密状态的手段的界面和算法，以及作为残疾/受损技术中介存在的规范世界导航的复杂性。身体症状是可减少的，量化的和形式化的，成为大数据时代医疗保健政治经济学中的一部分。该项目代表了我对技术数据与自我之间的交叉点的研究兴趣，以及我照顾1型糖尿病儿童的个人经历，对他们来说，算法技术和身体增强正在塑造他对自己的状况和身体自我的早期感知和理解。该研究是通过1+3 ESRC DTP学生资助，从2020年10月开始，ESRC DTP硕士在社会科学研究。博士研究项目将在沃里克大学跨学科研究中心进行，由Nerea Calvillo博士和Michael Dieter博士监督。在我之前的学术经历中，我获得了伍尔弗汉普顿大学的广播和新闻学士学位，以及沃里克大学的数字文化硕士学位。

This research project will explore and elucidate the relationship between digital health technologies and the lived experience of sufferers of Type 1 Diabetes. The proliferation of digital mobile health technologies such as Constant Glucose Monitors (CGM) and Insulin Pumps has revolutionised care conditions for Type 1 Diabetes patients, leading to largely improved health outcomes in the form of better regulated blood glucose levels and potential reduction in Hba1C levels, prolonging life and deferring the development of comorbidities arising from the condition. Outside of clinical outcomes, deeper sociological investigation is required to understand the eventualities of technologies that augment, mediate and define states of being through subdermal sensors, algorithms and interfaces, and the newly emerging subjectivities of the disabled/impaired self.Following the traditions of Feminist Science and Technology Studies, Digital Cultural Studies and Disability Studies, I will apply critical social theory and philosophies of technology within an ethnographic observational study of Type 1 Diabetes Patients as both a person living with disability, and a user that relies on algorithmic interpretation and interface-based representations of the conditions of their body.Predominantly, my research focuses on the three pillars: The impaired/disabled self as technological hybrid, the interface and algorithm as a means to know, interpret and express intimate states of being, and the complexities of navigating the normative world as a disabled/impaired technologically mediated being. Physical symptoms are reducible, quantified and formalised, becoming part of the dataflow within the political economy of healthcare in the age of big data. The project represents a convergence of my research interest in the intersections between technology data and the self, and my personal experiences caring for a child with Type 1 Diabetes, for whom algorithmic technologies and bodily augmentations are shaping his early perception and understanding of his condition and physical self. The research is funded via a 1+3 ESRC DTP studentship commencing in October 2020 with an ESRC DTP Masters in Social Science Research. The PhD research project will be undertaken within the Centre for Interdisciplinary Studies at the University of Warwick, supervised by Dr Nerea Calvillo, and Dr Michael Dieter. In my previous academic experience, I have achieved a BA in Broadcasting and Journalism from the University of Wolverhampton, and an MA in Digital Culture from the University of Warwick.