Patients' experience with eczema self-management tools and the use of digital twin technology for disease representation to better understand and enga

关键目标--了解数字技术如何支持湿疹患者(自我管理)，以及陈述如何提高他们对病情的了解，以便能够控制它。研究问题-数字技术是否可以支持患者自我管理湿疹？在现有的数字工具中，是否有任何空白可以填补？(了解患者的需求，并可能开发一种新的工具。患者了解他们的情况(湿疹)吗？如果不了解，使用工具来表示他们的情况是否有助于他们更好地了解并使他们能够管理它？患者是否认为湿疹是一种残疾？如果有，他们有没有得到政府机构的支持？如果不是，我们如何才能让政策制定者改变他们对残疾构成的立场？精准医学，例如使用虚拟表示工具(数字双胞胎)支持患者，以更好地了解他们的病情和护理。还需要用于湿疹自我管理的经过验证和规范的交互式数字工具。

Key Objectives - To understand how digital technology can support patients with eczema (self-management) and how representation can improve their understanding of the condition to be able to take control of it. Research question - Whether digital technology can support patients in self-managing eczema? Are there any gaps in the available digital tools that could be filled? (Understanding patient needs and potentially developing a new tool. Do patients understand their condition (eczema) and if not, would using tools to represent their condition help them better understand it and empower them to manage it? Do patients perceive eczema as a disability? If so, do they have support available from government bodies? If not, how can we inform policy makers to change their stance on what constitutes a disability? Precision medicine, such as supporting patients with a virtual representation tool (digital twin) to better engage with their condition and care. There is also a need for validated and regulated interactive digital tools for eczema self-management.