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In their own words: Experiences of Cerebral Palsy and Multiple Sclerosis in Britain between 1980 and 2010.

In their own words: Experiences of Cerebral Palsy and Multiple Sclerosis in Britain between 1980 and 2010.
用他们自己的话说:1980 年至 2010 年间英国脑瘫和多发性硬化症的经历。
批准号:
2767268
负责人:
金额:
$0.0万
依托单位:
依托单位国家:
英国
项目类别:
Studentship
财政年份:
2022
资助国家:
英国
项目状态:
未结题
起止时间:
2022 至 --

项目摘要

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中文摘要
翻译
1980年至2010年被认为是英国肢体残疾人生活中的关键时刻。许多人认为,高水平的残疾行动、提高认识、1981年“国际残疾人年”的建立以及作为1995年“残疾歧视法”的一部分的立法改革导致肢体残疾人士的生活质量显著提高,但迄今为止,很少有研究分析这些变化对他们生活的影响。这个项目试图改变这一点。该项目对肢体残疾患者、他们的家人/照顾者、慈善机构和活动家进行了口述历史访谈,考察了1980至2010年间英国肢体残疾的生活经历,评估了在这一被认为是激进的改革时期,这些经历发生了多大程度的变化。随着英国社会朝着平等和包容的方向发展,残疾人的声音一直保持沉默;这个项目提高了他们的声音,促进了残疾历史学科的不断发展。虽然对生活经历的研究确实存在,但在范围和时间上都是有限的。从1980年到2010年,可以比较《多哈发展议程》通过之前和之后的经验,从而能够审查其影响。2002年代表卫生和养老金部门进行的研究,以及2006年代表残疾问题办公室进行的研究,调查了英国对残疾人的经历和歧视,但没有涵盖假设变化的整个时期。这种研究的官方性质往往产生了通过残疾医学模型加强障碍的效果。2002年的报告《终生残疾?》寻求为政府政策提供信息,而不是提供直接的改进(Grewal,喜悦,Lewis,Swales,and Woodfield,2002,第1页)。相反,这项研究将考察英国在经历了20年的感知变化后,身体残疾的不同生活经历。除其他资料来源外,该项目将利用口述历史资料,分析残疾人在这一时期继续面临障碍的程度。评估残疾行动、慈善运动和政府立法对消除障碍的影响,如社会观念、残疾待遇、无障碍和包容性,这项研究不仅将提供比迄今更多的对这一时期人们生活的历史洞察,而且还将影响未来的变化。正是通过这样的历史研究,才能实施变革,使这对残疾的可见性、机构和社会包容的未来至关重要。
英文摘要
The period 1980 to 2010 has been considered a key moment in the lives of people with physical disabilities in Britain. Many have assumed that the high levels of disability activism, increased awareness, the 1981 foundation of the 'International Year of Disabled People', and legislative change as part of the 1995 Disability Discrimination Act (DDA) led to dramatic improvements in the quality of life for those with physical disabilities, and yet few studies to date have analysed the impact of such changes on their lives. This project seeks to change this. Conducting oral history interviews with people living with physical disabilities, their families/ carers, charities, and activists from the period, this project examines the lived experience of physical disability in Britain during 1980 to 2010, assessing to what extent experiences changed during this supposedly radical period of reform. With British society's drive towards equality and inclusivity, the voices of those with disabilities have been, and remain silenced; this project raises their voices, contributing to the growing discipline of disability history.Whilst studies on lived experiences do exist, they are limited in scope and chronology. Addressing the period 1980 to 2010 allows comparison of experiences before the DDA's passage and after, allowing an examination of its impact. Studies conducted on behalf of the Department of Health and Pensions in 2002, and Office for Disability Issues in 2006, investigated experiences and discrimination against disabled people in Britain, but did not cover the full period of supposed change. The official nature of such studies often had the effect of reinforcing barriers through medical models of disability. The 2002 report "Disabled for Life?" sought to 'inform Government policies' rather than provide direct improvements (Grewal, Joy, Lewis, Swales, and Woodfield, 2002, p. 1). Conversely, this study will examine the varied lived experiences of physical disability in Britain across two decades of perceived change. Drawing on oral histories, amongst other sources, this project will analyse the extent to which people with disabilities continued to face barriers during this period. Assessing the impact of disability activism, charity campaigns, and Government legislation on the removal of barriers such as social perceptions, treatment of disability, accessibility, and inclusivity, this study will not only provide greater historical insight into the lives of those in this period than hitherto exists but will also impact future change. It is through such a historical study that change can be implemented, making this fundamental to the future of disability visibility, agency, and societal inclusion.
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