Eating behaviour in autism: co-produced conceptualisation & scale development.

背景-自闭症患者的进食困难很常见，但研究不足，自闭症患者的观点和经历也没有得到充分的代表。现有的关于进食困难的社会文化理论主要是基于典型的神经人群，主要集中在负面的身体意象上。他们不能有效地解释自闭症患者不同的进食困难，这可能是由于感官和社会差异以及对同一性的偏好。为了确保自闭症饮食得到有效的支持，有必要对自闭症患者的饮食行为进行归纳性的概念化和测量，包括但不限于临床饮食失调的症状。目的-与自闭症患者合作，共同进行这项研究，该项目将首次对自闭症成年人的饮食行为进行概念化，并随后对自闭症患者的饮食行为进行测量。方法学-研究1将通过一项定性的在线焦点小组研究（总N=45）调查自闭症患者的饮食行为经历。这将为自闭症饮食提供新的见解，为自闭症特定饮食行为的概念图的发展提供信息。研究2是对250名自闭症成年人的在线定量调查，将比较社会文化和自闭症特有的饮食行为结构。研究3将使用一个德尔菲的过程，涉及生活经验的专家和研究专家，围绕一个孤独症的具体措施的饮食behaviors.Impact -我的研究将提高从自闭症的角度来看，全方位的饮食行为的概念理解。这将指导潜在的适应，以支持患有饮食困难的自闭症患者，并减少将非病理性饮食行为不当识别为紊乱。

Background - Eating difficulties in autism are common but under-researched, and perspectives and experiences of autistic people are under-represented. Existing socioculturaltheories of eating difficulties, centring on negative body image, are based on neurotypical populations. They do not effectively explain eating difficulties that present differently inautistic people, potentially due to sensory and social differences and preference for sameness. To ensure autistic eating is effectively supported, there is a need to inductivelyconceptualise and measure eating behaviour in autism, including - but not limited to - symptoms of clinical eating disorders.Objective - Working in partnership Autistica and with autistic people, to co-produce this research, this project will conceptualise eating behaviour in autistic adults for the firsttime, and subsequently develop a measure of eating behaviour in autistic people. Methodology - Study 1 will investigate autistic experiences of eating behaviour via a qualitative, online focus group study (total N=45). This will provide new insights on autistic eating to inform the development of a concept map of autismspecific eating behaviours. Study 2, an online quantitative survey of 250 autistic adults, will compare sociocultural and autism-specific constructs of eating behaviour. Study 3 will use a Delphi process, involving lived experience experts and research experts, to develop consensus around an autismspecific measure of eating behaviour.Impact - My research will improve the conceptual understanding of the full range eating behaviour from the autistic perspective. This will guide potential adaptations to support autistic people with eating difficulties and also reduce inappropriate identification of non-pathological eating behaviours as disordered.