The Influence of Companions and Socio-Demographic Characteristics on Patients' In

描述（由申请人提供）：这项拟议的研究解决了确保癌症患者能够获得做出明智决定所需信息的需求。研究表明，通过在门诊就诊时提问来积极寻求信息的患者比提问较少的患者获得更多的信息和其他好处。拟议的研究调查可能与患者信息寻求相关的因素，通过系统地观察和分析不同人群的患者（和同伴，如果存在的话）在以前的视频记录的肿瘤互动中提出的问题。假设与患者信息寻求相关的因素是（a）患者的社会人口特征（即，年龄、种族、社会经济地位）;（B）同伴的存在和信息寻求模式;以及（c）与肿瘤学家的关系质量。该次要分析的数据是作为一项更大的NCI资助研究的一部分收集的。数据包括城市综合癌症中心（N = 160）的患者、同伴和肿瘤学家的视频记录互动和人口统计信息。两个初步的观察系统的开发和应用;第一个分析观察到的质量与肿瘤学家的关系，第二个分析的频率和内容的互动过程中提出的问题。初步研究（N = 28）的结果表明，a）同伴比患者问更多的问题，B）积极的同伴-肿瘤学家关系与患者问题的频率呈负相关。此外，研究结果表明，老年患者更有可能带来一个同伴，问的问题比年轻患者少，黑人患者不太可能带来一个同伴比白色患者。虽然分析系统被认为是有用的，结果是耐人寻味的，小样本量限制了进一步的分析。拟议的研究扩展了这项研究，系统地观察和分析整个档案的互动（N = 160），以调查相关的因素，病人的信息寻求。研究结果将帮助肿瘤学家定制他们向所有患者提供信息的方式，无论其社会人口特征或同伴的存在如何。研究结果还将为进一步研究肿瘤学相互作用中同伴对患者结局的影响提供基础（例如，信息召回、知情决策和危难）。本研究的目的是：1）观察和分析癌症患者的信息寻求模式，在以前的视频记录门诊肿瘤互动在城市，综合性癌症中心;和2）分析的程度，社会人口特征，同伴的互动，和质量的关系与肿瘤科医生的患者信息寻求。这项拟议的研究调查的因素，可能会影响患者的信息寻求在门诊肿瘤互动，包括社会人口特征，同伴的互动，以及与肿瘤学家的关系的质量。研究人员将改进并应用一种观察分析仪器，以获得先前在城市综合癌症中心收集的160个患者/同伴-肿瘤学家互动视频的数据库。研究结果将帮助肿瘤学家定制他们向来自不同人群的患者提供信息的方式，从而改善患者获得所需信息的机会，以便就其癌症护理做出明智的决定。

DESCRIPTION (provided by applicant): This proposed research addresses the need to ensure that cancer patients have access to the information they need to make informed decisions. Research shows that patients who actively seek information by asking questions during outpatient encounters receive more information and other benefits than patients who ask fewer questions. The proposed study investigates factors that may be related to patient information seeking by systematically observing and analyzing questions asked by a diverse population of patients (and companions, if present) during previously video recorded oncology interactions. Factors hypothesized to be related to patient information seeking are (a) patient socio-demographic characteristics (i.e., age, race, socioeconomic status); (b) the presence and information seeking patterns of companions; and (c) the quality of the relationship with the oncologist. Data for this secondary analysis were collected as part of a larger NCI-funded study. Data consist of video recorded interactions and demographic information from patients, companions and oncologists at an urban comprehensive cancer center (N = 160). Two preliminary observational systems were developed and applied; the first analyzes the observed quality of the relationship with the oncologist and the second analyzes the frequency and content of questions asked during the interactions. Findings from a pilot study (N = 28) indicate that a) companions ask more questions than patients and b) positive companion-oncologist relationships are negatively related to the frequency of patient questions. Further, findings suggest that older patients are more likely to bring a companion and ask fewer questions than younger patients, and Black patients are less likely to bring a companion than White patients. Although the analytical systems were found to be useful and findings are intriguing, the small sample size limited further analysis. The proposed study extends this research by systematically observing and analyzing the entire archive of interactions (N = 160) to investigate factors related to patient information seeking. Findings will assist oncologists in tailoring the way they provide information to all patients, regardless of socio-demographic characteristics or the presence of companions. Findings will also provide the basis for further research examining the influence of companions in oncology interactions on patient outcomes (e.g., recall of information, informed decision-making and distress). The aims of this proposed research are: 1) To observe and analyze information seeking patterns of cancer patients in previously video recorded outpatient oncology interactions in an urban, comprehensive cancer center; and 2) To analyze the extent to which socio-demographic characteristics, companions in the interaction, and the quality of the relationship with the oncologist are related to patient information seeking. This proposed study investigates factors that may influence patient information seeking during outpatient oncology interactions, including socio-demographic characteristics, companions in the interaction, and the quality of the relationship with the oncologist. Researchers will refine and apply an observational analytical instrument to a data base of 160 video recorded patient/companion-oncologist interactions that were previously collected at an urban comprehensive cancer center. Findings will assist oncologists in tailoring the way they provide information to patients from diverse populations, thereby improving patients' access to the information they need to make informed decisions about their cancer care.