Community-Academic Partnership: Building an Infrastructure to Improve Health for

描述（由申请人提供）：本项目旨在为合作社区-学术健康中心（AHC）伙伴关系建立基础设施，以提高发育性残疾（DD）患者的健康状况，并优化其整个生命周期的全面社区参与。虽然学术界对社区-学术伙伴关系对AHC的价值仍然持怀疑态度，但研究继续证明社区-学术伙伴关系（CAP）在发展和加强社区在当地环境中提供与文化相关的卫生保健的能力，同时增强AHC的研究、教育和卫生保健实践使命方面的好处。目前，对于老年DD患者，关于将健康促进研究转化为强调实现健康公平的公共卫生实践的数据很少。缺乏与DD患者一起工作的经验，以及在向护理人员和卫生专业人员翻译知识和最佳做法方面存在的限制，往往转化为消极态度和实施障碍，从而妨碍提供经证明在文化上适当、可获得、可接受和公平的卫生保健。该项目与公共卫生特别相关，因为它力求通过社区-学术伙伴关系，帮助社区组织制定研究成果，作为提供优质服务的基础，改善贫困和服务不足人口的健康和运作结果，这些人口在健康方面存在重大差距。由于社区组织（cbo）拥有丰富的日常服务经验，他们可以通过参与文化相关研究问题的发展和更直接地致力于以证据为基础的实践的翻译和传播，促进研究到实践过程的双向性。一个强大的共同行动计划基础设施将确保调查工具在文化和语言上的适当性，确保将研究成果传播给社区利益攸关方，并弥合实践成果方面的差距，这些差距往往会维持健康差距的现状。通过建设社区组织工作人员的能力，我们可以通过外联和转诊举措将难以接触到的人群联系起来，从而更好地促进保健服务的提供。老年痴呆症患者CAP （CAP: PADD）将继续北角资源公司（NRI）与ARCA（为老年痴呆症患者提供日间/住宿服务的私人非营利cbo）和伊利诺伊大学芝加哥分校（UIC）之间的持续关系。NRI和ARCA与全州网络建立了工作关系，为居住在伊利诺伊州和新墨西哥州的DD患者提供日间/住宿服务。通过CAP: PADD，我们将在每个CBO雇用一名社区研究助理（CRA），他将成为社区代表，并作为促进学术卫生中心与当地社区之间沟通和合作的主要联络人。在该大学额外雇用一名研究助理将使CAP: PADD核心小组和伊利诺伊州和新墨西哥州的cbo网络能够无缝协调。CAP: PADD将创建projecship.org，作为一个免费的在线数字卓越中心，用于社区网络和产生研究问题；自愿参与研究项目；审查、出版和传播CAP: PADD网络的基于证据的产品，用于交互式可持续健康倡议计划（iSHIP）。projecship.org将提供一个互动论坛，以确定相关的社区研究和培训机会，以参与旨在开展以下活动的促进健康研究倡议：1)为DD患者服务的cbo的劳动力发展，2)对DD患者的健康促进和宣传，以及3)卫生专业人员照顾DD患者的能力建设。该网络和网站还将以互动形式提供产品，如视频、培训手册、课程以及通过服务学习、社区参与性研究和其他社区参与工作开发的产品。最后，我们将公布与社区健康促进项目有关的资助机会。创新扩散理论将指导CAP: PADD跨越三个层面（CBO能力、直接支持专业人员能力和DD患者），以影响针对DD老年人的循证健康促进实践的翻译、转移、覆盖、传播和采用。PADD可以在AHC和DD患者之间建立开放的沟通渠道，通过积极参与（员工和DD患者）制定研究问题、设计和开展研究，让其他cbo参与到研究事业中来；将研究成果转化和应用于社区实践和公共卫生倡议。拟议的为期三年的示范项目将为CAP: PADD提供急需的基础设施，以建立在老年DD患者中促进和保持健康生活方式的能力。CAP: PADD将使社区、卫生政策制定者和服务社区参与：1)确定相关利益相关者、合作伙伴和倡导者；2)举办项目实施和成果评估援助讲习班；3)支持数据共享和需求评估信息；4)确定公共卫生系统的最佳做法，以整合对DD患者的健康促进，这些做法可以通过演讲、同行评议和行业期刊以及网站传播。

DESCRIPTION (provided by applicant): This project seeks to create an infrastructure for a collaborative community-academic health center (AHC) partnership to enhance health status and optimize full community participation of people with developmental disabilities (DD) across the lifespan. While the value of community-academic partnerships to AHCs continues to be viewed with skepticism in the academic community, studies continue to demonstrate the benefits of community-academic partnerships (CAP) to develop and strengthen community capacity for the provision of culturally relevant health care in local settings while simultaneously enhancing the AHC's mission of research, education, and health care practice. Currently, for people aging with DD, little data exists regarding the translation of health promotion research into public health practice with an emphasis on achieving health equity. The lack of experience in working with people with DD and the limitations related to the translation of knowledge and best practices for caregivers and health professionals often translates into negative attitudes and implementation barriers that compromise the provision of proven culturally appropriate, accessible, acceptable, and equitable health care. This project is exceptionally relevant to public health because it seeks to improve health and functioning outcomes in a poor, underserved population that experiences significant health disparities using a community-academic partnership that assists community-based organizations in formulating research as a foundation for quality service delivery. Because community based organizations (CBOs) have a wealth of experience providing day-to- day services, they can facilitate the bi-directionality of the research to practice process by participating in the development of culturally relevant research questions and being more directly committed to the translation and dissemination of evidence-based practice. A strong CAP infrastructure will ensure the culturally and linguistically appropriateness of survey instruments, that research findings are disseminated to community stakeholders, and bridge gaps in practice outcomes that tend to maintain the status quo in health disparities. By building capacity among staff in CBOs we can better facilitate health care delivery by linking a hard-to-reach population through outreach and referral initiatives. CAP for Persons Aging with DD (CAP: PADD) will continue an ongoing relationship between North Pointe Resources, Inc (NRI) and ARCA, private non-profit CBOs providing day/residential services to persons with DD and the University of Illinois at Chicago (UIC). NRI and ARCA have working relationships with statewide networks providing day/residential services to persons with DD living in Illinois and New Mexico. Through CAP: PADD, we will hire a Community Research Associate (CRA) at each CBO, who will be a community representative and serve as a primary liaison facilitating communication and collaboration between the academic health center and the local community. An additional hire of a Research Associate at the University will allow a seamless coordination of the CAP: PADD Core Group and the Network of CBOs in Illinois and New Mexico. The CAP: PADD will create ProjectiSHIP.org as a free online Center of Digital Excellence for community networking and generating research questions; volunteering for research projects; and reviewing, publishing, and disseminating evidence-based products of the CAP: PADD Network for the interactive Sustainable Health Initiatives Programs (iSHIP). The ProjectiSHIP.org will provide an interactive forum for identifying relevant community-based research and training opportunities to participate in health promotion research initiatives aimed at the following activities: 1) workforce development in CBOs serving persons with DD, 2) health promotion and advocacy for people with DD, and 3) capacity building among health professionals to care for persons with DD. The network and website will also provide products in interactive forms, such as, videos, training manuals, curricula, and products developed through service-learning, community-based participatory research, and other community-engaged work. Lastly, we will provide announcements on funding opportunities related to community-based health promotion projects. Diffusion of Innovations Theory will guide the CAP: PADD across three levels (CBO capacity, direct support professionals' capacity, and persons with DD) to influence the translation, transfer, reach, dissemination, and adoption of evidence-based health promotion practices for persons aging with DD. CAP: PADD can create an open line of communication between the AHC and people with DD by engaging other CBOs in the research enterprise through active participation (both staff and people with DD) in formulating research questions, designing, and conducting research; translation and application of research findings to community-based practice and public health initiatives. The proposed three (3) year demonstration project will provide a much needed infrastructure for CAP: PADD to build capacity on ways to promote and maintain healthy lifestyles among persons aging with DD. CAP: PADD will engage the community, health policy makers and the service community to: 1) identify relevant stakeholders, partners, and advocates; 2) provide assistance workshops on program implementation and outcomes assessment; 3) support data sharing and needs assessment information; and 4) identify best practices for the public health system to integrate health promotion for people with DD that can be disseminated in presentations, peer reviewed and trade journals, and websites.