Cultural Adaptation of a Supportive Care Needs Measure for Latino Cancer Survivor

描述(由申请人提供)：到目前为止，关于拉美裔男性癌症幸存者的研究和信息很少，他们是美国最大、增长最快的少数族裔群体的一部分。考虑到严重影响生活质量的长期治疗相关副作用，以及拉丁裔被诊断出的年龄较小，这一点至关重要 让我们更好地了解这些高危人群的支持性护理需求。目前，几乎没有可用的数据提供有关为拉丁裔癌症男性幸存者制定和/或调整相关干预措施的支持性护理需求的信息。虽然已经开发了几种英语工具来评估癌症幸存者的支持性护理需求，如癌症幸存者未满足需求衡量标准(CASUN)，但没有一种工具在文化上适合拉丁裔西班牙语幸存者，或在拉美裔西班牙语幸存者中得到验证。在“主位范式”的指导下，本研究将采用探索性混合方法研究设计，采用一系列迭代和小组共识建立方法。将采用三阶段迭代方法，利用翻译和调整文书的文化对等模式来翻译和调整《公约》。这一过程还强调在研究的所有阶段使用概念、内容、语义和技术等值技术。其具体目标是：1)使用定性方法探索拉美裔男性癌症幸存者的支持性护理需求，以了解CASUN的文化适应情况；2)使用系统和迭代的方法适应西班牙语CaSUN；3)进行试点测试，并提供初步证据，证明翻译后的、适应了文化的措施对拉美裔男性癌症幸存者的有效性和可靠性。预计研究结果将为有效措施的跨文化适应提供基于证据的方法，并增加关于拉丁裔男性癌症存活率的稀少文献。通过更深入地了解拉美裔男性癌症幸存者的支持性护理需求，这些发现有望为现有的癌症相关健康差异科学做出贡献。拉美裔男性癌症幸存者是美国一个迅速增长的群体。就总体癌症生存意义而言，这项研究预计将产生一种对未来心理教育干预具有广泛影响和应用的衡量标准，该干预措施将使未得到充分服务的癌症幸存者参与并支持他们管理自己的疾病和康复。 公共卫生相关性：为了响应扩大开发工具以描述和衡量癌症幸存者的康复的需要，并增加为服务不足的人群创建干预措施的“知识库”，R03使用了一系列系统和迭代的方法来为拉丁裔癌症幸存者将经过验证的支持性护理需求衡量标准翻译成西班牙语并在文化上进行调整。

DESCRIPTION (provided by applicant): To date there is a paucity of research and information on Latino male cancer survivors, who are part of the largest and fastest growing racial/ethnic minority group in the United States. Considering the long term treatment related side effects that deeply affect quality of life, and that Latinos are being diagnosed at younger ages, it is critical that we develop a better understanding of the supportive care needs of this at-risk population. Currently, there are few available data that provide information with regard to supportive care needs for developing and or adapting relevant interventions for Latino cancer male survivors. While several English- language instruments have been developed to assess supportive care needs of cancer survivors, such as the Cancer Survivor Unmet Needs measure (CaSUN), none have been culturally adapted for or validated among Latino Spanish speaking survivors. Guided by an "emic-etic paradigm," this study will use an exploratory mixed method study design, which employs a series of iterative and group consensus-building approaches. A three phase iterative approach will be used to translate and adapt the CaSUN using the Cultural Equivalency Model for Translating and Adapting Instruments. This process also emphasized the use of conceptual, content semantic and technical equivalence techniques through all phases of the study. The specific aims are to 1) use qualitative methods to explore the supportive care needs of Latino male cancer survivors to inform the cultural adaption of the CaSUN, 2) adapt the Spanish language CaSUN using systematic and iterative methods, and 3) pilot test and provide initial evidence of validity and reliability of the translated and culturally adapted measure for Latino male cancer survivors. It is expected that study findings will inform an evidence-based approach for the cross-cultural adaptation of validated measures and add to the sparse literature on cancer survivorship among Latino men. Findings are expected to contribute to the existing science of cancer-related health disparities by providing a more in-depth understanding of the supportive care needs of Latino male cancer survivors, a rapidly growing group in the US. In terms of overall cancer survivorship significance, the study is expected to yield a measure that has had broad implications and application for future psych educational intervention that engage and support underserved cancer survivors in managing their illness and recovery. PUBLIC HEALTH RELEVANCE: Responding to the need to expand the development of instruments to describe and measure cancer survivor' recovery and to increase the "knowledge base" for the creation of interventions for underserved population, this R03 uses a series of systematic and iterative approaches to translate and culturally adapt a validated supportive care needs measure into Spanish for Latino cancer survivors.