Rocky Mountain Prevention Research Center

描述(申请人提供)：尽管监测是公认的公共卫生工具，但在美国，癌症监测的能力是有限的。一个更强大的美国..。癌症筛查监测系统将捕获有关癌症筛查利用的数据，这些数据与癌症登记处的结果数据、患者人口统计和风险因素信息以及患者和提供者使用的电子健康记录有关。该项目将评估对可进行筛查的癌症(宫颈癌、乳腺癌和结直肠癌)实施国家筛查监测系统的可行性和实用性。将进行环境扫描，以确定筛查计划(癌症和非癌症)，以指导调查过程。根据疾病预防控制中心的评估框架，利益攸关方将在这一形成性评估项目中发挥关键作用。利益攸关方将代表将参与筛查监测系统规划(国家慢性病和预防服务部门主任)、开发(健康信息学、电子健康记录供应商)、数据收集(筛查提供者、初级保健提供者)和/或最终使用(提供者、保险公司、公共卫生专业人员、研究人员)的各种实体。将使用混合方法，通过关键线人访谈、焦点小组和修改后的德尔福程序从多达150名利益相关者那里收集数据，以获得专家共识。这一信息的可信度和实用性将得到代表主要利益攸关方群体的咨询委员会的支持。从这项评估中收集的信息将产生关于实施国家癌症筛查监测系统的建议，这些建议不仅将在同行评议的出版物中传播，而且将在利益攸关方建议的渠道中传播。按照本项目的提议，确保建议纳入不同利益攸关方的观点，将增加实施国家制度的可能性，并将最大限度地提高其效用和长期可持续性。

DESCRIPTION (provided by applicant): Despite the fact that surveillance is a well-recognized public health tool, the capability for cancer surveillance in the U.S. is limited. A more robust U.. cancer screening surveillance system would capture data on cancer screening utilization that was linked with: outcome data from cancer registries, patient demographic and risk factor information, and electronic health records of use to patients and providers. This project will assess the feasibility and utility of implementing a national screening surveillance system for screening-amenable cancers (cervical, breast and colorectal cancer). An environmental scan to identify screening programs (both cancer and non-cancer) will be conducted to guide the process of inquiry. In keeping with the CDC's Framework for Evaluation, stakeholders will play a key role in this formative evaluation project. Stakeholders will represent various entities who would be involved in the planning (directors of state chronic disease and prevention services departments), development (health informatics, electronic health record vendors), data collection (screening providers, primary care providers) and/or end-use (providers, insurers, public health professionals, researchers) of a screening surveillance system. Mixed methods will be used to gather data from up to 150 stakeholders through key informant interviews, focus groups, and a modified Delphi process for expert consensus. The credibility and utility of this information will be supported through input from an Advisory Board, representing key stakeholder groups. Information gleaned from this assessment will result in recommendations for implementing a national cancer screening surveillance system, which will be disseminated not only in a peer-reviewed publication but channels recommended by stakeholders. Assuring that the recommendations incorporate viewpoints from diverse stakeholders, as proposed for this project, will increase the likelihood that a national system will be implemented and will maximize its utility and long-term sustainability.