Cultural Adaptation of a Supportive Care Needs Measure for Latino Cancer Survivor

描述（由申请人提供）：迄今为止，关于拉丁美洲男性癌症幸存者的研究和信息很少，他们是美国最大和增长最快的种族/少数民族群体的一部分。考虑到长期治疗相关的副作用，深深影响生活质量，并且拉丁美洲人在年轻时被诊断出来， 我们需要更好地了解这一高危人群的支持性护理需求。目前，有几个可用的数据，提供信息方面的支持性护理需求，为拉丁美洲癌症男性幸存者制定和/或调整相关的干预措施。虽然已经开发了几种英语工具来评估癌症幸存者的支持性护理需求，如癌症幸存者未满足需求衡量标准（CaSUN），但没有一种工具在文化上适用于或在拉丁美洲西班牙语幸存者中得到验证。本研究将以“emic-etic范式”为指导，采用探索性混合方法研究设计，采用一系列迭代和小组共识建立的方法。三个阶段的迭代方法将被用来翻译和适应CaSUN使用翻译和适应文书的文化对等模型。这一过程还强调在研究的所有阶段使用概念、内容语义和技术等同性技术。具体目标是：1）使用定性方法探索拉丁美洲男性癌症幸存者的支持性护理需求，以告知CaSUN的文化适应，2）使用系统和迭代方法适应西班牙语CaSUN，3）试点测试并提供翻译和文化适应措施的有效性和可靠性的初步证据。预计研究结果将为验证措施的跨文化适应提供循证方法，并增加拉丁美洲男性癌症生存率的稀疏文献。研究结果预计将有助于现有的癌症相关的健康差异的科学，提供了一个更深入的了解拉丁美洲男性癌症幸存者，在美国迅速增长的群体的支持性护理需求。就整体癌症生存率意义而言，该研究预计将产生一种措施，对未来的心理教育干预具有广泛的影响和应用，这些干预措施将参与和支持服务不足的癌症幸存者管理他们的疾病和康复。

DESCRIPTION (provided by applicant): To date there is a paucity of research and information on Latino male cancer survivors, who are part of the largest and fastest growing racial/ethnic minority group in the United States. Considering the long term treatment related side effects that deeply affect quality of life, and that Latinos are being diagnosed at younger ages, it is critical that we develop a better understanding of the supportive care needs of this at-risk population. Currently, there are few available data that provide information with regard to supportive care needs for developing and or adapting relevant interventions for Latino cancer male survivors. While several English- language instruments have been developed to assess supportive care needs of cancer survivors, such as the Cancer Survivor Unmet Needs measure (CaSUN), none have been culturally adapted for or validated among Latino Spanish speaking survivors. Guided by an "emic-etic paradigm," this study will use an exploratory mixed method study design, which employs a series of iterative and group consensus-building approaches. A three phase iterative approach will be used to translate and adapt the CaSUN using the Cultural Equivalency Model for Translating and Adapting Instruments. This process also emphasized the use of conceptual, content semantic and technical equivalence techniques through all phases of the study. The specific aims are to 1) use qualitative methods to explore the supportive care needs of Latino male cancer survivors to inform the cultural adaption of the CaSUN, 2) adapt the Spanish language CaSUN using systematic and iterative methods, and 3) pilot test and provide initial evidence of validity and reliability of the translated and culturally adapted measure for Latino male cancer survivors. It is expected that study findings will inform an evidence-based approach for the cross-cultural adaptation of validated measures and add to the sparse literature on cancer survivorship among Latino men. Findings are expected to contribute to the existing science of cancer-related health disparities by providing a more in-depth understanding of the supportive care needs of Latino male cancer survivors, a rapidly growing group in the US. In terms of overall cancer survivorship significance, the study is expected to yield a measure that has had broad implications and application for future psych educational intervention that engage and support underserved cancer survivors in managing their illness and recovery.