South Texas Pediatric NCI Community Oncology Research Program (NCORP)

描述(由申请人提供)：南得克萨斯州儿童NCI社区肿瘤学研究计划(STP NCORP)针对少数族裔和弱势群体，由五个独立的儿童肿瘤学小组(COG)机构组成。集水区(南得克萨斯州和德克萨斯州中部的大部分地区)为分布在90,000平方英里的大量患者提供服务。人口是年轻的，大多数是西班牙裔(50%)，18岁以下的患者有相当大一部分生活在贫困中，特别是在德克萨斯州-墨西哥边境地区。这项基础设施拨款的目的是双重的：1)提供基础设施，以维持NCI赞助的机构层面的积极临床试验计划；2)发展支持癌症护理提供研究的基础设施。它将支持参加NCL赞助的癌症临床试验(治疗和癌症控制)的儿童癌症患者和青少年(AYA)的研究登记和保留所需的数据管理和其他活动。此外，这笔赠款将支持开发和维护收集关键数据(人口统计数据、社会经济地位、医疗保险覆盖范围等)所需的基础设施。这将帮助我们了解和解决影响向患有癌症的西班牙裔儿童和AYA提供护理的无数因素。对于癌症护理提供研究，参与者的定义更广泛，除患者外，还包括提供者、机构和医疗保健系统。

DESCRIPTION (provided by applicant): The South Texas Pediatric NCI Community Oncology Research Program (STP NCORP) for Minority and Underserved is composed of five independent Children's Oncology Group (COG) institutions. The catchment area (South Texas and most of Central Texas) serves a large population of patients spread over 90,000 square miles. The population is young and in majority Hispanic (> 50%) with a significant portion of patients under the age of 18 living in poverty, particularly in the Texas-Mexico border region. The purpose of this infrastructure grant is dual: 1) Provide the infrastructure to maintain an active NCI sponsored clinical trial program at the institution level; and 2) develop an infrastructure that will support cancer care delivery research. It will support the data management and other activities necessary to the enrollment and retention on study of pediatric cancer patients and Adolescents and Young Adults (AYAs) with pediatric-type cancer participating in NCl-sponsored cancer clinical trials (therapeutic and cancer control). In addition this grant will support the development and maintenance of the infrastructure necessary to collect crucial data (demographics, SES, healthcare coverage, etc.) that will help us understand and address the myriad of factors influencing the delivery of care to Hispanic children and AYAs with cancer. For cancer care delivery research, the definition of participants is broader and includes providers, institutions, and healthcare systems in addition to patients.