South Texas Pediatric NCI Community Oncology Research Program (NCORP)

描述（由申请人提供）：南德克萨斯州儿科NCI社区肿瘤学研究计划（STP NCORP）的少数民族和服务不足是由五个独立的儿童肿瘤学小组（COG）机构。集水区（德克萨斯州南部和德克萨斯州中部的大部分地区）为分布在9万平方英里的大量患者提供服务。人口年轻，大多数是西班牙裔（> 50%），18岁以下的患者中有很大一部分生活在贫困中，特别是在德克萨斯州-墨西哥边境地区。该基础设施补助金的目的是双重的：1）提供基础设施，以在机构层面维持NCI赞助的积极临床试验计划; 2）开发支持癌症护理提供研究的基础设施。它将支持数据管理和其他必要活动，以招募和保留参与NCI申办的癌症临床试验（治疗和癌症控制）的儿科癌症患者和患有儿科癌症的青少年和年轻成人（AYA）。此外，这笔赠款将支持收集关键数据（人口统计，SES，医疗保险等）所需的基础设施的开发和维护。这将有助于我们理解和解决影响西班牙裔儿童和癌症患者护理的无数因素。对于癌症护理提供研究，参与者的定义更广泛，包括提供者，机构和医疗保健系统以及患者。

DESCRIPTION (provided by applicant): The South Texas Pediatric NCI Community Oncology Research Program (STP NCORP) for Minority and Underserved is composed of five independent Children's Oncology Group (COG) institutions. The catchment area (South Texas and most of Central Texas) serves a large population of patients spread over 90,000 square miles. The population is young and in majority Hispanic (> 50%) with a significant portion of patients under the age of 18 living in poverty, particularly in the Texas-Mexico border region. The purpose of this infrastructure grant is dual: 1) Provide the infrastructure to maintain an active NCI sponsored clinical trial program at the institution level; and 2) develop an infrastructure that will support cancer care delivery research. It will support the data management and other activities necessary to the enrollment and retention on study of pediatric cancer patients and Adolescents and Young Adults (AYAs) with pediatric-type cancer participating in NCl-sponsored cancer clinical trials (therapeutic and cancer control). In addition this grant will support the development and maintenance of the infrastructure necessary to collect crucial data (demographics, SES, healthcare coverage, etc.) that will help us understand and address the myriad of factors influencing the delivery of care to Hispanic children and AYAs with cancer. For cancer care delivery research, the definition of participants is broader and includes providers, institutions, and healthcare systems in addition to patients.