Co-designing a Technology-based Health Research Results Dissemination Tool with AIAN People

项目摘要/摘要 该项目旨在开发一种响应文化的技术工具，用于协作卫生研究成果 在不同的美洲印第安人和阿拉斯加原住民(AIAN)社区中传播。新方法和新方法 迫切需要尊重和响应文化的研究成果传播技术，以 帮助研究人员让不同的参与者参与进来，并更好地为这些社区服务。对于许多研究人员来说， 传播研究成果的主要方法是将手稿提交给同行评议的期刊或 会议报告的摘要，本质上限制了他们的听众是学术学者。限制 社区利益相关者和研究人员之间的对话，他们中的许多人可能不熟悉 社区对健康或共享信息的社区系统的看法，降低了 研究结果将在社区层面实施，这可能会对社区健康产生负面影响 结果。可靠的健康研究信息支持健康，但如果该信息不是使用 方法是可理解的和有背景的，它们的好处就少了。安人经历了一场 不信任健康研究实践的历史，例如在未经知情同意的情况下暴露于程序中 以及在没有社区投入或批准的情况下传播研究成果。像这样的疏忽增加了 从项目概念化到成果的所有阶段的研究都需要透明和问责 传播。此外，AIAN在大型国家健康研究计划中的代表性不足--例如 作为NIH的我们所有人的研究计划-或者没有以有意义的方式就如何最好地 实施卫生研究或传播与当地社区环境相关的可采取行动的研究结果。尽管在那里 在社区参与健康研究方面取得了进展，但只探索了有限的研究 与成果传播进程有关的具体协作。这项研究涉及到共同设计、共同开发、 与AIAN共同评估用于传播卫生研究结果的利益相关者协作工具 社区。对于目标1，我们将使用价值敏感的设计和以用户为中心的设计方法来建立 重视知情标准，以支持目标2A的活动。在Aim 2A中，我们将整合数字讲故事技术 采用参与式设计方法，共同设计低保真原型，以便协作发布结果。目标 2B将涉及试行利用从目标2A获得的数据设计的原型，该原型将是 评估AIAN社区的可行性和可接受性。这项研究的成功将带来改进 研究交流和增强对卫生研究的信任，这将增加卫生研究的影响 总体而言，确保将研究成果有效地传播给AIAN社区。这将支持 社区在理解和可能纳入研究建议方面发挥了重要作用。

PROJECT SUMMARY/ABSTRACT This project aims to develop a culturally responsive technology tool for collaborative health research results dissemination with diverse American Indian and Alaska Native (AIAN) communities. New methods and technologies for respectful and culturally responsive research results dissemination are urgently needed both to help researchers engage diverse participants and to serve those communities better. For many researchers, the primary methods of disseminating research results are to submit manuscripts to peer-reviewed journals or abstracts for conference presentations which essentially limits their audience to academic scholars. Limiting dialogue between community stakeholders and researchers, many of whom may be unacquainted with community perceptions of health or community systems of sharing information, decreases the likelihood that study results will be implemented at a community level which can have a negative impact on community health outcomes. Reliable health research information supports wellness but if that information is not presented using methods that are understandable and contextualized, they have less benefit. AIAN people have experienced a history of distrustful health research practice such as being exposed to procedures without informed consent and having research results disseminated without community input or approval. Oversights like these increase the need for transparency and accountability in research at all stages from project conceptualization to results dissemination. Moreover, AIAN have been under-represented in large national health research initiatives—such as NIH’s All of Us research program—or have not been consulted in meaningful ways about how best to implement health research or disseminate actionable findings relevant to local community context. Though there has been progress with community engagement in health research, only limited research has explored collaboration specific to the results dissemination process. This study involves the co-design, co-development, and evaluation of a stakeholder collaboration tool for health research results dissemination with AIAN communities. For Aim 1, we will use value-sensitive design and user-centered design approaches to establish value informed criteria to support activities for Aim 2A. In Aim 2A, we will integrate digital storytelling techniques with participatory design methods to co-design low fidelity prototypes for collaborative results dissemination. Aim 2B will involve pilot implementation of a prototype designed with data obtained from Aim 2A which will be evaluated for feasibility and acceptability in AIAN communities. Success in this research will result in improved research communication and enhanced trust in health research which will increase the impact of health research overall by ensuring that research outcomes are effectively disseminated to AIAN communities. This will support the community in understanding and possibly incorporating research recommendations.