Utah Medical Home Web Site Project

描述(申请人提供)：尽管大多数儿童慢性病/病症非常少见(1/3000)，但在美国大约有13%的儿童受到影响。一位忙碌的儿科医生或家庭医生会照顾许多这样的患者，尽管她/他的其他患者中几乎没有人会分享相同的诊断。为有特殊卫生保健需求的儿童(CSHCN)提供最佳护理具有挑战性，需要最新的知识、随时可以获得专门的卫生保健资源以及相当长的时间来管理和协调护理。家庭和教育工作者也是护理的主要提供者，如果所有提供者都能获得信息，当他们作为合作伙伴共同工作时，CSHCN将受益。这些都是“医疗之家”的关键组成部分。该项目旨在通过提供基于网络的信息和资源访问系统，支持初级保健医生以及家庭和教育工作者应对这些挑战。犹他州协作组 医疗之家项目(UCMHP)开发了MedHome门户网站(http://www.medhomeportal.org))来实现这一目标。这项提议将通过以下具体目标进一步发展该网站的基础设施，提高其效用和可用性，以及其提供的服务和影响： 1.转换为XML数据结构并完成创作和内容管理工具，集成 UMLS索引。使用XML将为数据和文档提供健壮而灵活的结构。UMLS 索引将允许最佳搜索和导航。站点和内容管理流程/工具 将能够严格开发和审查内容并维护关于以下内容的最新信息 服务。 2.扩展和优化MedHome门户的实用性和可用性：可用性测试将推动持续 在演示、导航和个性化功能方面有所改进。将优化可访问性。 3.与合作伙伴合作，扩大门户的内容和影响。区域和国家合作伙伴关系将扩大内容开发和同行审查，通过临床提供MedHome门户资源 信息系统，并使其他地区能够使用本地访问门户的定制版本 服务列表。 将对医生、家庭、教育工作者和其他人进行推广和培训。使用 注册用户基础增加，增强的评估将成为可能。卫生系统与公共卫生 伙伴关系将支持长期可持续性。

DESCRIPTION (provided by applicant): Though most chronic diseases/conditions in childhood are very uncommon (<1/3000), together they affect about 13% of children in the United States. A busy pediatrician or family physician will care for many such patients, though few, if any, of her/his other patients will share the same diagnoses. Providing optimal care for Children with Special Health Care Needs (CSHCN) is challenging, requiring up-to-date knowledge, ready access to specialized health care resources, and considerable time to manage and coordinate care. Families and educators are also key providers of care and CSHCN will benefit when all the providers are enabled with information and when they work together as partners. These are key components of a "Medical Home". This project seeks to support primary care physicians, as well as families and educators, in meeting these challenges by providing a Web-based information and resource access system. The Utah Collaborative Medical Home Project (UCMHP) has developed the MedHome Portal (http://www.medhomeportal.org) to accomplish this goal. This proposal will further development of the site's infrastructure, enhance its utility and usability, and its offerings and its impact through the following specific aims: 1. Convert to an XML data structure and complete authoring and content management tools, integrating UMLS indexing. Use of XML will provide a robust and flexible structure for data and documents. UMLS indexing will allow optimal searching and navigation. Site and content management processes/tools will enable rigorous development and review of content and maintenance of current information on services. 2. Expand and optimize utility and usability of the MedHome Portal: Usability testing will drive ongoing improvement in presentation, navigation, and personalized features. Accessibility will be optimized. 3. Work with partners to expand content and impact of the Portal. Regional and national partnerships will expand content development and peer review, offer MedHome Portal resources through clinical information systems, and enable other locales to access customized versions of the Portal with local service listings. Promotion and training will be integrated for physicians, families, educators, and others. With increased registered user base, enhanced evaluation will be possible. Health system and public health partnerships will support long-term sustainability.