Co-designing a Technology-based Health Research Results Dissemination Tool with AIAN People

项目总结/摘要 该项目旨在为合作卫生研究成果开发一种文化响应技术工具 与不同的美洲印第安人和阿拉斯加原住民（AIAN）社区传播。新方法和 迫切需要尊重和文化敏感的研究成果传播技术， 帮助研究人员吸引不同的参与者，并更好地为这些社区服务。对于许多研究人员来说， 传播研究成果的主要方法是向同行评审的期刊投稿， 会议报告的摘要，其受众基本上限于学术学者。限制 社区利益攸关方和研究人员之间的对话，其中许多人可能不熟悉 社区对健康的看法或社区信息共享系统， 研究结果将在社区一级实施，这可能对社区健康产生负面影响 结果。可靠的健康研究信息支持健康，但如果这些信息没有使用 方法是可以理解的和上下文，他们有较少的好处。AIAN人经历了一个 有不信任的健康研究实践史，例如未经知情同意而接受手术 以及在没有社区参与或批准的情况下传播研究成果。像这样的权利增加了 从项目构想到成果的所有阶段的研究都需要透明和问责 传播。此外，AIAN在大型国家卫生研究倡议中的代表性不足， 作为美国国立卫生研究院的所有我们的研究计划-或者没有以有意义的方式咨询如何最好地 开展卫生研究或传播与当地社区有关的可采取行动的研究结果。虽然 在社区参与健康研究方面取得了进展，只有有限的研究探索了 在成果传播过程中开展具体的协作。本研究涉及共同设计，共同开发， 与AIAN一起传播卫生研究成果的利益攸关方合作工具的评估 社区.对于目标1，我们将使用价值敏感设计和以用户为中心的设计方法来建立 为目标2A的活动提供支持的价值知情标准。在目标2A中，我们将整合数字讲故事技术 使用参与式设计方法，共同设计低保真度原型，以实现协作成果传播。目的 2B将涉及试点实施一个原型，该原型是根据目标2A获得的数据设计的， 评估在AIAN社区的可行性和可接受性。这项研究的成功将改善 研究交流和增强对卫生研究的信任，这将增加卫生研究的影响 总体而言，通过确保研究成果有效地传播到AIAN社区。这将支持 社区理解并可能采纳研究建议。

PROJECT SUMMARY/ABSTRACT This project aims to develop a culturally responsive technology tool for collaborative health research results dissemination with diverse American Indian and Alaska Native (AIAN) communities. New methods and technologies for respectful and culturally responsive research results dissemination are urgently needed both to help researchers engage diverse participants and to serve those communities better. For many researchers, the primary methods of disseminating research results are to submit manuscripts to peer-reviewed journals or abstracts for conference presentations which essentially limits their audience to academic scholars. Limiting dialogue between community stakeholders and researchers, many of whom may be unacquainted with community perceptions of health or community systems of sharing information, decreases the likelihood that study results will be implemented at a community level which can have a negative impact on community health outcomes. Reliable health research information supports wellness but if that information is not presented using methods that are understandable and contextualized, they have less benefit. AIAN people have experienced a history of distrustful health research practice such as being exposed to procedures without informed consent and having research results disseminated without community input or approval. Oversights like these increase the need for transparency and accountability in research at all stages from project conceptualization to results dissemination. Moreover, AIAN have been under-represented in large national health research initiatives—such as NIH’s All of Us research program—or have not been consulted in meaningful ways about how best to implement health research or disseminate actionable findings relevant to local community context. Though there has been progress with community engagement in health research, only limited research has explored collaboration specific to the results dissemination process. This study involves the co-design, co-development, and evaluation of a stakeholder collaboration tool for health research results dissemination with AIAN communities. For Aim 1, we will use value-sensitive design and user-centered design approaches to establish value informed criteria to support activities for Aim 2A. In Aim 2A, we will integrate digital storytelling techniques with participatory design methods to co-design low fidelity prototypes for collaborative results dissemination. Aim 2B will involve pilot implementation of a prototype designed with data obtained from Aim 2A which will be evaluated for feasibility and acceptability in AIAN communities. Success in this research will result in improved research communication and enhanced trust in health research which will increase the impact of health research overall by ensuring that research outcomes are effectively disseminated to AIAN communities. This will support the community in understanding and possibly incorporating research recommendations.