Clinical interpretation and application of patient-reported communicative participation outcomes after stroke, and the influence of psychosocial factors

项目摘要/摘要 许多经历过中风的人都有语言和/或语言障碍。这些 障碍改变了一个人的交流方式，并显著影响了他们在这两个专业的生活参与度 和一些次要的方式。与有沟通障碍的人合作的临床医生，称为言语障碍- 语言病理学家或SLP，经常使用问卷来了解他们的客户参与不同的 沟通情况。一份这样的问卷是交流参与题库，或CPIB。 这份问卷帮助SLP了解客户沟通障碍对他们日常生活的影响 生活，他们使用这些信息来帮助制定治疗计划和目标。然而，研究证据表明， 我们认为，言语/语言障碍以外的因素可能会影响一个人回答问题的方式 在CPIB上。一些可能影响对CPIB反应的因素包括心理社会因素，如 慢性压力、抑郁、韧性和自我效能感。如果SLP除了询问这些因素外， 为了提供CPIB，他们可能会曲解CPIB分数，错过客户的重要需求。这个 每个人的交往参与与心理社会因素之间的联系往往被忽视 因为SLP几乎没有接受过关于衡量这些因素或它们如何影响治疗及其结果的培训。 这种对客户需求的误解可能会影响治疗计划和目标，但不会 帮助个人客户。为了解决这个问题，本研究项目将研究如何应对CPIB 与中风后有沟通障碍的人的这些心理社会因素有关。该项目 分为两个研究。研究1的目的是考察慢性阻塞性肺疾病患者的CPIB和心理社会因素。 卒中后沟通障碍患者的压力、抑郁、韧性和自我效能感 了解这些因素会如何影响他们对日常生活的参与。研究团队会问 参与者提供关于自己的基本信息(年龄、中风日期等)、完整的演讲和 语言测试，完成CPIB和询问心理社会因素的问卷，并回答 就这些调查问卷中提出的主题提出面试问题。九个月后，研究小组 我将要求这些人重复问卷调查和部分访谈，以帮助了解这些 随着时间的推移，因素会发生变化。研究2的目的是检查SLP如何使用CPIB来理解 客户的参与和其他经历，以及他们在治疗中如何考虑心理社会因素 目标和活动。研究小组将要求使用CPIB的SLP完成调查和跟进 关于他们如何使用这份问卷的访谈，包括他们如何看待 他们的客户参与了治疗计划。这一研究项目的结果将澄清重要但被忽视的 卒中后沟通参与和心理社会因素之间的联系，并提供 关于SLP如何使用CPIB为个别客户制定更好的治疗计划的关键信息。

Project Summary/Abstract Many people who have experienced a stroke have language and/or speech impairments. These impairments alter how a person communicates, and significantly impacts their participation in life in both major and minor ways. Clinicians who work with individuals with communication impairments, called Speech- Language Pathologists or SLPs, often use questionnaires to learn about their clients’ participation in different communication situations. One such questionnaire is the Communicative Participation Item Bank, or the CPIB. This questionnaire helps SLPs understand the impact of the client’s communication impairment on their daily life, and they use this information to help create treatment plans and goals. However, research evidence tells us that factors other than the speech/language impairment may contribute to how a person answers questions on the CPIB. Some factors that may influence responses to the CPIB include psychosocial factors such as chronic stress, depression, resilience, and self-efficacy. If the SLP does not ask about these factors in addition to providing the CPIB, they may misinterpret CPIB scores and miss important needs of their client. The connection between each individual’s communicative participation and psychosocial factors is often neglected because SLPs have little training on measuring these factors or how they impact treatment and its outcomes. This misunderstanding about clients’ needs may influence treatment plans and goals in a way that does not help individual clients. To address this problem, this research project will examine how responses to the CPIB are related to these psychosocial factors for people with communication impairments after stroke. The project is divided into 2 studies. The purpose of Study 1 is to examine the CPIB and psychosocial factors of chronic stress, depression, resilience, and self-efficacy with individuals with post-stroke communication impairments to understand how these factors may influence their participation in daily life. The research team will ask participants to provide basic information about themselves (age, stroke date, etc.), complete speech and language tests, complete the CPIB and questionnaires that ask about the psychosocial factors, and answer interview questions about the topics presented in these questionnaires. Nine months later, the research team will ask these individuals to repeat the questionnaires and part of the interview to help understand how these factors change over time. The purpose of Study 2 is to examine how SLPs use the CPIB to understand the participation and other experiences of their clients, and how they consider psychosocial factors in treatment goals and activities. The research team will ask SLPs who use the CPIB to complete a survey and follow-up interview about how they use this questionnaire, including how they consider the psychosocial experiences of their clients in treatment planning. The results of this research project will clarify the important but neglected connection between communicative participation and psychosocial factors following a stroke, and provide critical information about how SLPs can use the CPIB to create better treatment plans for individual clients.