A stakeholder derived intervention to enhance technology engagement and reduce the emotional divide in distance caregiving of older adults with cognitive impairment

项目摘要 该职业发展奖将为申请者(Alyssa Weakley博士)提供必要的培训， 知识和经验，以过渡到独立的研究生涯。韦克利博士的总体职业目标是 开发和验证可访问和创新的基于技术的干预措施，以改善日常生活 阿尔茨海默病和相关痴呆症(ADRD)患者的功能，照顾需求 非正式的家庭照顾者，以及照顾双方的关系/纽带。韦克利博士将朝着这一目标努力 通过(1)确定利益相关者(即照顾者、照顾者)需求的方法进行培训和指导 关于技术的使用、采用和遵守；(2)发展包容性(就种族/民族而言)和 可获得的(就技术熟悉度而言)照顾者干预；(3)随机对照试验(RCT) 行为干预；以及(4)多学科团队领导力和基于技术的数据 管理层。在这四个领域的专家指导下进行的培训将为韦克利博士提供 完成三个研究目标的知识和技能，提出研究项目的重点。这些目标 包括(1)确定帮助认知受损照顾者和远程照顾者参与的方法 通过利益相关者焦点小组利用技术；(2)通过利益相关者共同设计反复调整和改进 和参与式研究方法，一种促进使用和整合远程护理的干预方法 以网络为基础的工具(Interactive-Care(i-care))融入日常生活；以及(3)实施一项试点RCT，审查 相对于单纯的基础i-Care培训，i-Care目标干预的可行性和可接受性。这个 拟议的研究具有重要意义，因为它将创新的远程护理人员技术与利益相关者结合在一起 参与开发和测试旨在改善护理接受者结局的新型干预措施， 照顾者，以及他们的二元关系。据申请人所知，没有一项研究利用了联合设计 技术培训方法，概括了远程护理者和护理者的需求。结果将服务于 作为R01研究的试点数据，该研究进一步研究最健壮、可扩展和可访问的方法 与ADRD和照顾者一起改善老年人的功能结果。为了完成她的研究和 培训目标，Weakley博士将利用现有的资源，并利用加州大学三个中心的专业知识 加州戴维斯：国家老龄化研究所资助的阿尔茨海默病研究中心，健康老龄化 在数字世界倡议中，以及家庭护理研究所。这些资源，以及指导 团队对Weakley博士研究计划的坚定承诺，将为Weakley博士提供丰富的 这无疑将帮助她实现自己的职业发展目标。

Project Summary This career development award will provide the applicant (Alyssa Weakley, PhD) with the necessary training, knowledge, and experience to transition to an independent research career. Dr. Weakley’s overall career goal is to develop and validate accessible and innovative technology-based interventions that improve everyday functioning in individuals with Alzheimer’s disease and related dementias (ADRD), caregiving needs of informal family caregivers, and the relationship/bond of the care dyad. Dr. Weakley will build toward this goal with training and mentorship in (1) methods for identifying stakeholder (i.e., caregiver, care receiver) needs regarding technology use, adoption, and adherence; (2) developing inclusive (in terms of race/ethnicity) and accessible (in terms of technology familiarity) caregiver interventions; (3) randomized controlled trials (RCTs) of behavioral interventions; and (4) multidisciplinary team leadership and technology-based data management. Training aided by expert mentorship in these four areas will provide Dr. Weakley with the knowledge and skills to complete three research aims, the focus of the proposed research project. These aims include (1) identifying approaches to help cognitively impaired care receivers and distance caregivers engage with technology via stakeholder focus groups; (2) iteratively adapt and refine, through stakeholder co-design and participatory research methods, an intervention that facilitates use and integrates a remote caregiving web-based tool (Interactive-Care (I-CARE)) into everyday life; and (3) implementing a pilot RCT examining the feasibility and acceptability of the I-Care target intervention relative to basic I-Care training alone. The proposed research is significant because it couples innovative remote caregiver technology with stakeholder engagement to develop and test a novel intervention designed to improve outcomes for care receivers, caregivers, and their dyadic relationship. No research, to the applicant’s knowledge, has utilized a co-design approach for technology training that encapsulates remote caregiver and care receiver needs. Results will serve as pilot data for an R01 study that further investigates the most robust, scalable, and accessible approaches to improving functional outcomes in older adults with ADRD and caregivers. To complete her research and training aims, Dr. Weakley will leverage existing resources with expertise at three centers at University of California Davis: National Institute on Aging funded Alzheimer’s Disease Research Center, the Healthy Aging in a Digital World initiative, and the Family Caregiving Institute. These resources, along with the mentoring team’s strong commitment to Dr. Weakley’s research program, will provide Dr. Weakley with an enriched environment that will undoubtedly help her achieve her career development goals.