Development of an Inter-University Oral Health Research Database

描述（由申请人提供）： 尽管在过去的十年中牙科取得了巨大的进步，但牙医，管理人员，教育工作者，研究人员和流行病学家在美国获得口腔健康数据集的机会有限。我们的长期目标是通过促进牙科患者护理质量的提高、研究、教育进步和发现来改善口腔健康。该应用程序的目标是建立一个口腔健康数据库，可以接受和整合来自不同牙科数据源的数据，并允许最终用户探索和提取信息，以支持其特定的研究或决策需求。在该项目中，德克萨斯大学休斯顿分校、塔夫茨大学、哈佛牙科医学院和加州大学旧金山弗朗西斯科牙科学校将为拟议的存储库提供去识别数据。我们寻求将这四所牙科学校的特定数据元素整合到一个用户友好和安全的存储库中。在目标1中，我们将完善数据管理和治理的政策和程序。在目标2中，我们将整合四所牙科学校的数据。在目标3中，我们将开发和实现一个用户门户，允许终端用户进行不同级别和粒度的访问。第1级用户将被允许查看有关人口中疾病或病症流行率的汇总级数据。2级用户将有权浏览和探索数据库。3级用户在提交研究申请后将有权访问特定的数据集。最后，在目标4中，我们将通过在用户在其所在机构与系统交互后的6个月内对系统进行总结性评估来评估开发的资源。我们将重点评估数据的使用方式、系统的可用性和安全性，并确定如何改进系统。该项目具有创新性，因为我们寻求为研究人员和临床医生创建第一个全面的大学间口腔健康数据集。我们预计，该项目将产生积极的影响，不仅为研究人员，但也为一线临床医生，教育工作者和管理人员，谁将能够确定最佳实践和探索国家的趋势，在一个大的患者群体寻求牙科保健。

DESCRIPTION (provided by applicant): Despite great advances in dentistry during the past decade, dentists, administrators, educators, researchers, and epidemiologists have had limited access to oral health datasets in the US. Our long term goal is improving oral health by facilitating dental patient care quality improvement, research, educational advancement and discovery. The objective of this application is to establish an Oral Health Data Repository that can accept and integrate data from disparate dental data sources, and allow end users to explore and extract information to support their specific research or decision making needs. In this project, the University of Texas Houston, Tufts University, Harvard School of Dental Medicine and the University of California, San Francisco, dental Schools will contribute de-identified data to the proposed repository. We seek to integrate specific data elements from these four Dental Schools into a user-friendly and secure repository. In aim 1 we will refine policies and procedures for data stewardship and governance. In aim 2 we will integrate data from the four dental schools. In aim 3 we will develop and implement a user portal that allows different levels and granularity of access by end users. Level 1 users will be allowed to view summary level data regarding prevalence of diseases or conditions across the population. Level 2 users will have access to browse and explore the database. Level 3 users will have access to a specific dataset after submitting a research application. And finally in aim 4, we will evaluate the developed resource by conducting a summative evaluation of the system over a 6-month period after users interact with the system at their home institutions. We will focus the evaluation on how the data are used, usability and security of the system, and determine how the system can be improved. The project is innovative because we seek to create the first comprehensive inter-university oral health dataset for researchers and clinicians. We expect that this project will have a positive impact not only for researchers, but also for frontline clinicians, educators and administrators, who will be able to determine best practices and explore national trends in a large patient population seeking dental care.