课题基金 / 基金详情

The Stakeholders Partnering for Arthrogryposis Research: Client-Centered Care and Collaboration (SPARC-­Collaboration)

The Stakeholders Partnering for Arthrogryposis Research: Client-Centered Care and Collaboration (SPARC-­Collaboration)
利益相关者合作进行关节弯曲研究：以客户为中心的护理与协作 (SPARC-协作)
批准号：
340503
负责人：
Dahan-Oliel Nomi
金额：
$1.09万
依托单位：
Shriners Hospital for Children (Montral)
依托单位国家：
加拿大
项目类别：
Operating Grants
财政年份：
2015
资助国家：
加拿大
项目状态：
已结题
起止时间：
2015-11-01 至 2016-11-01
来源：
https://webapps.cihr-irsc.gc.ca/decisions/p/project_details.html?applId=340503&lang=en
关键词：
Arthrogryposis Multiplex Congenita Family-Centered Research Knowledge Exchange Lifespan Approach Multi-Site Collaboration Patient Engagement

项目摘要

项目成果

Dahan-Oliel Nomi的其他基金

相关文献

中文摘要
翻译
由于关节畸形的罕见和人群的异质性，目前对其的研究还很少，这给经典的研究带来了挑战。患有罕见疾病的人往往被低估，因为他们没有被纳入典型研究和
英文摘要
Current research on arthrogryposis is scarce due to the its rarity and the heterogeneity of the population rendering classic research challenging. Individuals with rare diseases are often under-represented as they are not included in typical research and
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International Stakeholders Partnering for Arthrogryposis Research: Client-Centered Care Network (iSPARC-Network)
Stakeholders Partnering for Arthrogryposis Research: Client-Centered Care Network (SPARC-Network)