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The Scleroderma Support group Leader Education (SSLED) Program: a randomized controlled trial

The Scleroderma Support group Leader Education (SSLED) Program: a randomized controlled trial
硬皮病支持小组领导者教育 (SSLED) 计划:一项随机对照试验
批准号:
362055
负责人:
Delisle Vanessa
金额:
$6.56万
依托单位国家:
加拿大
项目类别:
Fellowship Programs
财政年份:
2016
资助国家:
加拿大
项目状态:
已结题
起止时间:
2016-11-01 至 2018-11-01

项目摘要

项目成果

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中文摘要
翻译
系统性硬化症(SSc)或硬皮病是一种罕见的自身免疫性结缔组织疾病。支持团体是罕见疾病患者(包括SSc)的重要资源,大多数支持团体由罕见疾病患者领导。许多SSc患者,
英文摘要
Systemic sclerosis (SSc), or scleroderma, is a rare autoimmune connective tissue disease. Support groups are an important resource for people with rare diseases, including SSc, and most support groups are led by people with the disease. Many SSc patients,
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会议论文
The DEPRESsion Screening Data (DEPRESSD) Registry: Using Individual Patient Data Meta-analysis to Generate Valid Estimates of Diagnostic Accuracy
Development and Validation of a Fatigue Assessment Protocol for Scleroderma
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