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Exploring the needs for a web-based decision aid and support tool for guardians of infant females presenting with congenital adrenal hyperplasia

Exploring the needs for a web-based decision aid and support tool for guardians of infant females presenting with congenital adrenal hyperplasia
探索先天性肾上腺增生女婴监护人对基于网络的决策辅助和支持工具的需求
批准号：
367360
负责人：
Tahir Irtaza
金额：
$1.27万
依托单位：
McMaster University
依托单位国家：
加拿大
项目类别：
Studentship Programs
财政年份：
2016
资助国家：
加拿大
项目状态：
已结题
起止时间：
2016-12-01 至 2017-12-01
来源：
https://webapps.cihr-irsc.gc.ca/decisions/p/project_details.html?applId=367360&lang=en
关键词：
Congenital Adrenal Hyperplasia Decision Aid And Support Tool Disorders Of Sex Developement Ehealth Information Requirements Specification Informed Consent Needs And Gaps Analyses Pediatric Urology Shared Decision Making User Requirements

项目摘要

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中文摘要
翻译
先天性肾上腺增生症(CAH)是一种性发育障碍，当出生时染色体正常的婴儿遗传了影响荷尔蒙合成的酶缺陷。这种缺陷会使婴儿暴露在
英文摘要
Congenital adrenal hyperplasia (CAH), a disorder of sex development, occurs when an infant born with “normal” chromosomes inherits an enzyme deficiency that affects how hormones are made. This deficiency causes infants to become expose
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