Biomedical Data Sharing and Reuse: Attitudes and Practices of Clinical and Scientific Research Staff.
Biomedical Data Sharing and Reuse: Attitudes and Practices of Clinical and Scientific Research Staff.
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生物医学数据共享和再利用：临床和科学研究人员的态度和实践。
DOI：
10.1371/journal.pone.0129506
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发表时间：
2015
期刊：
影响因子：
3.7
通讯作者：
Brandys B
中科院分区：
文献类型：
--
作者：
Federer LM;Lu YL;Joubert DJ;Welsh J;Brandys B
生物医学研究界正在做出重大努力，鼓励共享和重复使用研究数据，以提高研究的可重复性，促进科学发现。虽然确实存在一些技术挑战，但许多共享和重用的障碍是社会性的，源于研究人员对共享数据的担忧和态度。此外，临床和基础科学研究人员在其社区内共享数据时面临着自己独特的挑战。本研究调查了这些差异的经验和看法共享数据，以及临床和基础科学研究人员之间的共享障碍。美国国立卫生研究院校内研究项目的临床和基础科学研究人员接受了关于他们对共享和重用研究数据的态度和经验的调查。在190名受访者中，135名自称是临床或基础科学研究人员的受访者被纳入了这项分析。比值比和Fisher精确检验是检查变量之间潜在关系的主要方法。必要时进行最差情况敏感性测试。虽然大多数答复者认为数据共享和再利用对其工作很重要，但他们普遍认为其专门知识水平较低。直接与其他研究人员共享数据很常见，但大多数受访者没有将数据上传到存储库的经验。临床和基础科学研究人员的态度和做法之间存在着一些显着的差异，包括他们的动机共享，他们不共享的原因，以及准备数据所需的工作量。即使在生物医学研究的范围内，解决不同研究群体的独特问题对于鼓励研究人员共享和重复使用数据也很重要。促进数据共享和再利用的努力不仅应旨在解决技术问题，还应解决研究人员对共享数据的关切。考虑到研究人员和研究社区的不同实践，标准化数据实践（如数据引用和存储库上传）可以使共享和重用更容易。
Significant efforts are underway within the biomedical research community to encourage sharing and reuse of research data in order to enhance research reproducibility and enable scientific discovery. While some technological challenges do exist, many of the barriers to sharing and reuse are social in nature, arising from researchers’ concerns about and attitudes toward sharing their data. In addition, clinical and basic science researchers face their own unique sets of challenges to sharing data within their communities. This study investigates these differences in experiences with and perceptions about sharing data, as well as barriers to sharing among clinical and basic science researchers. Clinical and basic science researchers in the Intramural Research Program at the National Institutes of Health were surveyed about their attitudes toward and experiences with sharing and reusing research data. Of 190 respondents to the survey, the 135 respondents who identified themselves as clinical or basic science researchers were included in this analysis. Odds ratio and Fisher’s exact tests were the primary methods to examine potential relationships between variables. Worst-case scenario sensitivity tests were conducted when necessary. While most respondents considered data sharing and reuse important to their work, they generally rated their expertise as low. Sharing data directly with other researchers was common, but most respondents did not have experience with uploading data to a repository. A number of significant differences exist between the attitudes and practices of clinical and basic science researchers, including their motivations for sharing, their reasons for not sharing, and the amount of work required to prepare their data. Even within the scope of biomedical research, addressing the unique concerns of diverse research communities is important to encouraging researchers to share and reuse data. Efforts at promoting data sharing and reuse should be aimed at solving not only technological problems, but also addressing researchers’ concerns about sharing their data. Given the varied practices of individual researchers and research communities, standardizing data practices like data citation and repository upload could make sharing and reuse easier.
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影响因子：
2.8
作者：
Ardini, Mary-Anne;Pan, Huaqin;Cooley, Philip C.
通讯作者：
Cooley, Philip C.
影响因子：
64.8
作者：
Collins, Francis S.;Tabak, Lawrence A.
通讯作者：
Tabak, Lawrence A.
DOI：
10.1126/science.1180598
发表时间：
2009-10-09
期刊：
Science (New York, N.Y.)
影响因子：
--
作者：
Field D;Sansone SA;Collis A;Booth T;Dukes P;Gregurick SK;Kennedy K;Kolar P;Kolker E;Maxon M;Millard S;Mugabushaka AM;Perrin N;Remacle JE;Remington K;Rocca-Serra P;Taylor CF;Thorley M;Tiwari B;Wilbanks J
通讯作者：
Wilbanks J
DOI：
10.2471/blt.06.029843
发表时间：
2006-05-01
期刊：
Bulletin of the World Health Organization: International Journal of Public Health
影响因子：
--
作者：
Chokshi, Dave A;Parker, Michael;Kwiatkowski, Dominic P
通讯作者：
Kwiatkowski, Dominic P
影响因子：
12.3
作者：
Dyke SO;Hubbard TJ
通讯作者：
Hubbard TJ