Early Pandemic Experiences of Autistic Adults: Predictors of Psychological Distress.
Early Pandemic Experiences of Autistic Adults: Predictors of Psychological Distress.
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DOI：
10.1002/aur.2480
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发表时间：
2021-06
期刊：
影响因子：
--
通讯作者：
Chung WK
中科院分区：
文献类型：
--
作者：
Bal VH;Wilkinson E;White LC;Law JK;SPARK Consortium;Feliciano P;Chung WK
COVID-19大流行扰乱了世界各地的生活。自闭症成年人同时出现医疗和精神疾病的风险更高，可能更容易难以适应与流行病相关的变化和社交距离要求，并应对持续的不确定性。另一方面，大流行病可能会导致更广泛的社区更好地理解和接受住宿，这可能有助于在大流行病之后为自闭症成年人提供支持。为了更多地了解他们早期的大流行经历，在线调查被发送给参加西蒙斯增强自闭症研究知识（SPARK）的独立成年人。第一次调查于2020年3月30日至4月19日开放;发送给原始响应者的后续调查于5月27日至6月6日开放，共有396名参与者参与了两次调查。我们发现，女性、年轻、先前诊断出精神健康状况、个人COVID-19经历（即，知道某人有症状或检测呈阳性）或对未来不太抱希望的人报告的负面影响最大。随着时间的推移，幸福感的下降预示着T2时心理压力更大，这是T1影响和压力水平以及COVID-19总影响增加的原因。在线服务的好处较少也预示着后来的困境。虽然人们往往侧重于应对大流行病的负面影响，但心理健康提供者可能会考虑注重积极影响的方法，例如培养希望和了解有助于从在线服务中受益的因素。在COVID-19大流行期间，自闭症成年人可能面临心理困扰的风险。目前的研究表明，年轻的女性自闭症成年人在大流行之前有心理健康诊断，并且知道有人表现出COVID-19症状或检测呈阳性，报告了更多受COVID-19负面影响的领域，并且更难应对这些影响。随着时间的推移，希望的减少与更大的心理痛苦有关。从在线服务中获得的好处较少也预示着2个月后的困境。这些结果为我们在大流行期间为自闭症成年人提供支持提供了进一步探索的重要领域。
The COVID‐19 pandemic has disrupted lives around the world. Autistic adults are at higher risk for co‐occurring medical and psychiatric conditions and may be more prone to difficulties adapting to pandemic‐related changes and social distancing mandates and coping with ongoing uncertainties. On the other hand, the pandemic may lead to greater understanding and acceptance of accommodations in the broader community that may facilitate supports for autistic adults beyond the pandemic. To learn more about their early pandemic experiences, online surveys were sent to independent adults enrolled in the Simons Powering Autism Research Knowledge (SPARK). The first survey was open from March 30 to April 19, 2020; a follow‐up survey sent to original responders was open from May 27 to June 6, yielding 396 participants with data for both surveys. We found that adults who were female, younger, had prior diagnoses of a mental health condition, personal COVID‐19 experience (i.e., knowing someone who had symptoms or tested positive) or less frequent hope for the future reported the greatest negative impacts. Decrease in feelings of hopefulness over time predicted greater psychological distress at T2, accounting for T1 impact and distress levels and increases in total COVID‐19 impact. Less perceived benefit of online services also predicted later distress. Although there tends to be a focus on coping with negative effects of the pandemic, mental health providers may consider approaches that focus on positives, such as fostering hope and understanding factors that facilitate benefit from online services. Autistic adults may be at risk for psychological distress during the COVID‐19 pandemic. The current study suggests that autistic adults who were younger, female, had a mental health diagnosis before the pandemic and knew someone who showed symptoms or tested positive for COVID‐19 reported more areas negatively impacted by COVID‐19 and greater difficulty coping with those effects. Decreases in hope over time were associated with greater psychological distress. Less perceived benefit from online services also predicted distress 2 months later. These results suggest important areas to further explore as we develop supports for autistic adults during the pandemic.
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影响因子：
5.1
作者：
Holingue C;Badillo-Goicoechea E;Riehm KE;Veldhuis CB;Thrul J;Johnson RM;Fallin MD;Kreuter F;Stuart EA;Kalb LG
通讯作者：
Kalb LG
影响因子：
5.2
作者：
Stacey, Taylor-Leigh;Froude, Elspeth H.;Foley, Kitty-Rose
通讯作者：
Foley, Kitty-Rose
影响因子：
3.7
作者：
Kohane IS;McMurry A;Weber G;MacFadden D;Rappaport L;Kunkel L;Bickel J;Wattanasin N;Spence S;Murphy S;Churchill S
通讯作者：
Churchill S
DOI：
10.3390/ijerph17051729
发表时间：
2020-03-01
影响因子：
--
作者：
Wang, Cuiyan;Pan, Riyu;Ho, Roger C.
通讯作者：
Ho, Roger C.
DOI：
10.1177/1362361316661261
发表时间：
2017-11
期刊：
Autism : the international journal of research and practice
影响因子：
--
作者：
Raymaker DM;McDonald KE;Ashkenazy E;Gerrity M;Baggs AM;Kripke C;Hourston S;Nicolaidis C
通讯作者：
Nicolaidis C