Challenges in the Parent-Child Communication of Health-related Information in Pediatric Cancer Care

Challenges in the Parent-Child Communication of Health-related Information in Pediatric Cancer Care
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小儿癌症护理中亲子健康相关信息沟通的挑战

DOI:
10.1145/3449184
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发表时间:
2021
影响因子:
--
通讯作者:
Park, Sun Young
Park, Sun Young
中科院分区:
--
文献类型:
--
作者:
Seo, Woosuk;Buyuktur, Ayse G.;Choi, Sung Won;Sedig, Laura;Park, Sun Young

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以往的研究表明,父母照顾者和儿童患者之间的有效沟通对儿童有许多好处,如提供情感支持和应对健康管理的技能。根据半结构化访谈,我们确定了父母照顾者在日常疾病管理中与孩子沟通健康相关信息时面临的挑战。三个突出的挑战,父母照顾者遇到的包括:(一)承认不同的看法和方法是一个癌症患者,(二)选择一个适当的沟通方法,(三)了解他们的孩子的未沟通的情绪。基于这些挑战,我们认识到儿童在疾病轨迹中发展的独特但隐含的需求,影响亲子二元关系。我们讨论了一个协作系统的设计机会,该系统通过支持儿童在整个疾病轨迹及以后的隐式和动态变化的需求来增强亲子二元沟通。
Previous works have shown that effective communication between parental caregivers and child patients has many benefits to the children, such as providing emotional support and coping skills for health management. Drawing on semi-structured interviews, we have identified the challenges parental caregivers face when communicating with their children about health-related information in daily illness management. Three salient challenges that the parental caregivers encountered include: (i) acknowledging different perceptions and approaches to being a cancer patient, (ii) choosing an appropriate communication method, and (iii) understanding their child's uncommunicated emotions. Based on these challenges, we recognize distinctive, yet implicit, needs that children develop during the illness trajectory, affecting the parent-child dyadic relationship. We discuss design opportunities for a collaborative system that enhances the parent-child dyadic communication by supporting the child's implicit and dynamically changing needs throughout the illness trajectory and beyond.
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