Ethical Challenges and Lessons Learned from Qualitative Research with Low-Income African American Women Living with HIV in the South.

Ethical Challenges and Lessons Learned from Qualitative Research with Low-Income African American Women Living with HIV in the South.
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DOI:
10.1353/hpu.2019.0122
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发表时间:
2019
影响因子:
1.4
通讯作者:
Fisher CB
Fisher CB
中科院分区:
医学4区
文献类型:
--
作者:
Fletcher FE;Rice WS;Ingram LA;Fisher CB

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美国南部的非洲裔美国妇女艾滋病毒感染者(WLWH)由于种族、性别、贫困和艾滋病毒状况的复杂交叉而面临高度边缘化。个人和社区在日常生活中所经历的社会脆弱性有可能加剧研究中的伦理紧张关系。因此,进行伦理研究需要注意不同研究人群的背景挑战和关切,以使参与者保护适应特定的社会文化背景。本报告利用贝尔蒙特报告的原则,通过突出第一作者对数据收集过程中出现的伦理挑战的描述,利用了对南方42名非洲裔美国妇女和女童的定性研究的数据。研究结果表明,参与者在他们的自然环境中可以告知发展的伦理研究战略密切相关的妇女的生活经历。研究结果还有助于为研究人员在科学研究中吸引边缘化群体提供经验指导。
African American women living with HIV (WLWH) in the U.S. South encounter heightened marginalization due to the complex intersections of race, gender, poverty, and HIV status. Social vulnerabilities experienced by individuals and communities in daily life have the potential to sharpen ethical tensions in the context of research. Thus, conducting ethical research requires attention to the contextual challenges and concerns of diverse research populations to tailor participant protections to a particular sociocultural context. Using principles from the Belmont Report, the present report draws on data from a qualitative study with 42 African American WLWH in the South by highlighting the first author’s accounts of ethical challenges that emerged during data collection. Findings suggest that engaging participants in their natural environments can inform the development of ethical research strategies germane to women’s lived experiences. Study findings also contribute to empirical guidance for investigators engaging marginalized populations in scientific research.
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