"I pretty much followed the law, and there weren't any decisions to make": A qualitative study of self-advocacy experiences of men with cancer.
"I pretty much followed the law, and there weren't any decisions to make": A qualitative study of self-advocacy experiences of men with cancer.
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DOI：
10.1111/nhs.12909
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发表时间：
2022-03
影响因子：
2.7
通讯作者：
Nilsen, Marci Lee
中科院分区：
文献类型：
--
作者：
Thomas, Teresa Hagan;Hadley, Makenna L.;Nilsen, Marci Lee
目前患者自我宣传的概念化集中在女性癌症患者身上，缺乏男性自我宣传的知识。本研究的目的是描述男性癌症患者自我宣传的关键组成部分。从癌症诊所和登记处招募有浸润性癌症病史的成年（≥18岁）男性。经过培训的研究人员领导了关于参与者的挑战，他们如何克服这些挑战以及自我宣传的障碍和促进者的个人半结构化访谈。所有的采访进行了分析，使用描述性内容分析方法，并合成为主要主题。在收到主要利益攸关方的反馈意见后，对这些主题进行了改进。参与者（N = 28）报告了三个主要的自我宣传主题：（一）通过信息和规划进行管理;（二）找到最好的团队并保持一致;（三）战略性社会联系。这些主题都有丰富的描述与代表性的报价为每个主题和副主题。基于这些发现，现有的患者自我宣传模式应进行调整，以包括男性如何自我宣传。临床医生应该考虑性别如何影响癌症患者自我倡导的方式和原因，以便他们能够最好地支持患者实现以患者为中心的护理。
Current conceptualizations of patient self-advocacy focus on women with cancer, leaving knowledge of male self-advocacy deficient. The purpose of this study is to describe the key components of self-advocacy among men with cancer. Adult (≥18 years old) men with a history of invasive cancer were recruited from cancer clinics and registries. Trained researchers led individual semi-structured interviews regarding participants’ challenges, how they overcame those challenges, and barriers and facilitators to their self-advocacy. All interviews were analyzed using descriptive content analysis methods and synthesized into major themes. These themes were refined after receiving feedback from key stakeholders. Participants (N = 28) reported three major self-advocacy themes: (i) managing through information and planning; (ii) finding the best team and falling in line; and (iii) strategic social connections. These themes are richly described with representative quotations for each theme and subtheme. Based on these findings, existing models of patient self-advocacy should be adjusted to encompass how men self-advocate. Clinicians should consider how gender may impact how and why patients with cancer self-advocate so that they can best support their patients in achieving patient-centered care.
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影响因子：
1.9
作者：
Pozzar, Rachel A.;Berry, Donna L.
通讯作者：
Berry, Donna L.
影响因子：
3.6
作者：
O'Malley, Denalee;Dewan, Asa A.;Hudson, Shawna V.
通讯作者：
Hudson, Shawna V.
影响因子：
5.8
作者：
Wessels, Hester;de Graeff, Alexander;Voest, Emile E.
通讯作者：
Voest, Emile E.
影响因子：
0.7
作者：
Hagan TL;Cohen S;Stone C;Donovan H
通讯作者：
Donovan H
DOI：
10.1097/ans.0000000000000342
发表时间：
2021-01-01
期刊：
ANS. Advances in nursing science
影响因子：
--
作者：
Thomas TH;Donovan HS;Rosenzweig MQ;Bender CM;Schenker Y
通讯作者：
Schenker Y