Bilingual Cancer Genetic Education Modules for the Deaf Community: Development and Evaluation of the Online Video Material.
Bilingual Cancer Genetic Education Modules for the Deaf Community: Development and Evaluation of the Online Video Material.
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DOI：
10.1007/s10897-017-0188-2
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发表时间：
2018-04
影响因子：
1.9
通讯作者：
Palmer C
中科院分区：
文献类型：
--
作者：
Boudreault P;Wolfson A;Berman B;Venne VL;Sinsheimer JS;Palmer C
美国手语 (ASL) 聋人社区（一个语言和文化社区）有关遗传性癌症以及家族史在癌症风险中的作用的健康信息需要改进。许多手语用户无法获得英语印刷版的癌症遗传教育材料，因为英语不是他们的母语或主要语言。根据疾病控制和预防中心的建议，印刷版健康教育材料的识字水平不应高于 6 年级水平（~11 至 12 岁），即使有此建议，手语用户或其他非英语母语人士仍然无法阅读印刷材料。遗传咨询正在成为医疗保健不可或缺的一部分，但在开发健康教育材料时，通常不会考虑 ASL 用户。因此，美国手语中可用的遗传咨询材料很少。视频和隐藏式字幕等在线工具为教育工作者和遗传咨询师提供了向聋人社区提供美国手语遗传信息数字化访问的机会。聋人遗传学项目团队采用双语方法开发了一个 37 分钟的美国手语交互式癌症遗传学教育模块 (CGEM) 视频，配有隐藏式字幕和测验，并证明与标准英文文本信息相比，这种方法可以带来更多的癌症遗传学知识，并增加获得咨询或测试的意愿。尽管已经通过多模式/语言方法为手语用户开发了视觉增强的教育材料，但对于可以适应手语用户的不同受众的设计功能知之甚少，因此该材料能够吸引广泛的受众。本文的主要目标是描述 CGEM 的发展，并确定观众人口统计特征是否与 CGEM 观看行为的两个可衡量方面相关：1）观看时间长度，以及 2）暂停、播放和搜索事件的数量。这些目标很重要，特别是对于聋哑人来说，因为大量同步内容（视频、印刷品）需要对视觉和文本材料进行跨模式认知处理。需要使用技术和表达策略来增强而不是干扰该人群的健康学习。
Health information about inherited forms of cancer and the role of family history in cancer risk for the American Sign Language (ASL) Deaf community, a linguistic and cultural community, needs improvement. Cancer genetic education materials available in English print format are not accessible for many sign language users because English is not their native or primary language. Per Center for Disease Control and Prevention recommendations, the level of literacy for printed health education materials should not be higher than 6th grade level (~11 to 12 years old), and even with this recommendation, printed materials are still not accessible to sign language users or other non-native English speakers. Genetic counseling is becoming an integral part of healthcare but often ASL users are not considered when health education materials are developed. As a result, there are few genetic counseling materials available in ASL. Online tools such as video and closed captioning offer opportunities for educators and genetic counselors to provide digital access to genetic information in ASL to the Deaf community. The Deaf Genetics Project team used a bilingual approach to develop a 37-minute interactive Cancer Genetics Education Module (CGEM) video in ASL with closed captions and quizzes, and demonstrated that this approach resulted in greater cancer genetic knowledge and increased intentions to obtain counseling or testing, compared to standard English text information. Though visually enhanced educational materials have been developed for sign language users with multi-modal/lingual approach, little is known about design features that can accommodate a diverse audience of sign language users so the material is engaging to a wide audience. The main objectives of this paper are to describe the development of the CGEM and to determine if viewer demographic characteristics are associated with two measurable aspects of CGEM viewing behavior: 1) length of time spent viewing, and 2) number of pause, play, and seek events. These objectives are important to address, especially for Deaf individuals because the amount of simultaneous content (video, print) requires cross-modal cognitive processing of visual and textual materials. Use of technology and presentational strategies are needed that enhance, not interfere with health learning in this population.
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影响因子：
3.5
作者：
Neuhauser, Linda;Kreps, Gary L.
通讯作者：
Kreps, Gary L.
DOI：
10.1080/01690960500139363
发表时间：
2006-08-01
期刊：
LANGUAGE AND COGNITIVE PROCESSES
影响因子：
--
作者：
Boudreault, Patrick;Mayberry, Rachel I.
通讯作者：
Mayberry, Rachel I.
影响因子：
2
作者：
Boudreault, Patrick;Baldwin, Erin E.;Palmer, Christina G. S.
通讯作者：
Palmer, Christina G. S.
影响因子：
4.4
作者：
McKee, Michael M.;Paasche-Orlow, Michael K.;Pearson, Thomas
通讯作者：
Pearson, Thomas
影响因子：
1
作者：
Hauser, Peter C.;O'Hearn, Amanda;Thew, Denise
通讯作者：
Thew, Denise